1st Annual TeamMissy Bowl-a-Thon 10/29/2011
Hello, Missy and her family and friends want to say ....Thank you for visiting my fundraising page! Also TeamMissy will be hosting the 1st Annual TeamMissy Bowl-a-thon ! Come bowl with TeamMissy in Livonia, MI at Woodland Lanes from 1:00 to 4:30pm. ****raffles*****and****50/50****** more info to come!
Melissa better known as Missy to all, is two and half years old ,originally from Westland, Mi. Missy was diagnosed with Rett's Syndrome in November 2010. Having Rett Syndrome hinders Missy from almost any everyday activity. Although Missy cannot walk, talk, or use her hands her demeanor is always in high spirits. Missy's goal is to bring community awareness to Rett Syndrome and to hopefully one day find a cure, so that ALL of Rett's Angels will have a voice.
What is Rett syndrome?
Rett syndrome is a genetic neurological disorder that occurs almost exclusively in females. Rett syndrome becomes apparent after 6-18 months of early normal development. It results in a regression that leads to lifelong impairments. It is often misdiagnosed as autism or cerebral palsy and has no cure. Those inflicted with this disorder have no purposeful hand use due to their repetitive hand movements, hand wringing and mouthing. Speech is lost, seizures develop and scoliosis occurs. Irregular breathing patterns, hyperventilation and breath holding take place. More than half of the girls and women lose their ability to walk. Those diagnosed with Rett syndrome require maximum assistance with even the most basic daily activities. A girl is born every five hours with Rett syndrome.
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