Evan's Quest for a Cure
Thank you for visiting our fundraising page to support "Evan's Quest for a Cure" Dinner Fundraiser.
We would LOVE to see you at the event this year but, if you can't make it in-person, we have created this page as an option to make a contribution to help us in our fundraising efforts. Donating through this website is simple, fast and secure.
Please forward this to anyone who you think might want to donate too!
The Luebbe family & the Cincinnati FA Fundraising Committee
DETAILS
Date: Saturday April 30, 2011
Time: 5:00 pm - 8:00 pm
Location: Liberty Jr. School
7055 Dutchland Parkwway
Liberty Twp., Ohio 45044
EVENT ACTIVITIES
- Appetizers by Bonefish Grill
- Dinner by Outback Steakhouse
- Live Music
- Guest Speaker
- Basket Raffle
- And More…
P.S. 100% of funds raised go towards research to FARA www.cureFA.org.
P.S.S. Keep checking www.emlfund.com for event details as we get closer.
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What is Friedreich's Ataxia?
Friedreich’s ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's ataxia. Onset of symptoms can vary from childhood to adulthood. Childhood onset of FA is usually between the ages of 5 and 15 and tends to be associated with a more rapid progression.
Signs & Symptoms
- loss of coordination (ataxia) in the arms and legs
- fatigue - energy deprivation and muscle loss
- vision impairment, hearing loss, and slurred speech
- aggressive scoliosis (curvature of the spine)
- diabetes mellitus (insulin - dependent, in most cases)
- a serious heart condition (enlarged heart - hypertrophic cardiomyopathy)
With your support - we can make a difference!