The EDNF Baltimore & DC Local Groups Annual Fundraising Page
EDNF Baltimore and DC Metro Charter Local Groups - Annual Fundraiser Site
The EDNF Baltimore Local Group and EDNF DC Metro Charter Local Group of the Ehlers-Danlos National Foundation (EDNF) sincerely thank you for visiting this page.
Our mission is to assist all people affected by EDS through networking, education and various support activities.
To help the EDNF continue to assist local groups in becoming and remaining chartered as non-profit entities throughout the country to provide direct connections and support for people living with Ehlers-Danlos Syndrome, it is necessary for EVERY group affiliated with the EDNF to assist with fundraising for the foundation in order to cover the costs involved in state registration fees, materials provided to groups for outreach and education, and administrative tasks associated with providing such services for each group. Please help spread the word about our efforts to everyone you know.
Ehlers-Danlos Syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders. It is a progressively debilitating syndrome that can cause loose unstable joints which dislocate easily, skin fragility (tears and bruises easily), and/or organ fragility (major organs, veins and arteries can spontaneously rupture). EDS affects about 1 in 5000 people; however it is grossly under- and/or mis-diagnosed: some 80% of people with EDS do not receive a proper diagnosis or treatment within their lifetime. We are working to change this statistic by raising awareness of this disorder within the medical community and in society at large. The EDNF is a 501(c)(3) nonprofit organization.
So many people suffer needlessly, each and every day, for year after year, because their doctors did not receive an adequate or even an accurate education about this debilitating disorder. Without funds to sponsor research projects we cannot get the medical textbooks changed so that all students of medicine will receive more substantial and more accurate information about this widespread and grossly under diagnosed disorder.
Our deepest thanks to you for your support. Please forward this to anyone who you think might want to donate too!
We thank you, sincerely,
Connie Lavallee, President of the EDNF Baltimore Group
and Sheri Collins, President of the EDNF DC Metro Charter