Thank you so much for visiting this page for my Ehlers-Danlos Syndrome project. Any transactions made through this page are fast and secure.

 

 Please help spread the word about my efforts to everyone you know.

 

 So many people suffer needlessly, each and every day, for year after year, because their doctors did not receive an adequate or even an accurate education about this debilitating disorder. Without funds to sponsor research projects we cannot get the medical textbooks changed so that all students of medicine will receive more substantial and more accurate information about this widespread and grossly under diagnosed disorder. 

 

 My sincere thanks to you for your support. Please forward this to anyone who you think might want to donate too!

 

 I thank you, sincerely. - Mags

 

 Ehlers-Danlos Syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders. It is a progressively debilitating syndrome that can cause loose unstable joints which dislocate easily, skin fragility (tears and bruises easily), and/or organ fragility (major organs, veins and arteries can spontaneously rupture). EDS affects about 1 in every 5000 people; however it is grossly under- and/or mis-diagnosed: some 80% of people with EDS do not receive a proper diagnosis or treatment within their lifetime. We are working to change this statistic by raising awareness of this disorder within the medical community and in society at large. The EDNF is a 501(c)(3) nonprofit organization.