On March 15, 2010, we lost our Mom and friend to Pulmonary Fibrosis. Since that time, I have met so many people afflicted with the disease and it has only strengthened my commitment to work to find a cure. For those that knew Mom and saw what she went through, you know what this disease does to people - it is a horrific affliction that not only slowly takes away your ability to breath, but it also takes away so much else, from the patient and those that love them.
Last year, I went to Washington D.C. with members of the Coalition for Pulmonary Fibrosis to meet with Congressional staffers in an attempt to raise awareness and create a national patient registry. I realized that we have a long way to go, and can use all the help we can get.
We are asking for donations to help find a cure so that other patients and families do not have to suffer the same that we did. We would also love to have more people participate in the walk as well, so feel free to come along, the walk is August 19th at Larz Anderson Park in Brookline. It's a beautiful location and an opportunity to meet a lot of great people!
We miss you, and love you, Mom!