Thanks so much for checking out my page! On May 20th, I'll be joining my little buddy Lily in an effort to raise awareness and funding for Rett Syndrome research. For those who have never heard of it before, Rett Syndrome is a rare, debilitating genetic disorder found almost exclusively in girls. Lily cannot walk, talk, or use her hands in a purposeful way, but has learned to communicate with her beautiful eyes and contagious smile.
Lily might be smaller than most 3-year-olds, but she is one tough little cookie! With countless hours of therapies, hospital stays, and surgeries under her belt, she is a fighter! Lily and her parents, two very dear friends of mine, have become an inspiration.
Currently, scientists are looking at possible medications and treatments to reduce the symptoms of Rett. A few years back, they identified the specific gene mutation that causes Rett, which has been guiding them in their search to reverse the symptoms completely. If you can help in any way, it would mean so much to so many Rett angels and families looking for some relief.
Please help us if you can - Thanks again!!!