Friends and Family,
This year, I will be taking on the challenge to run the Boston Marathon on Monday April 16, 2012. Along with 12 other Genzyme employees, I am running to raise money for the National Organization for Rare Disorders.
NORD is the consumer organization that advocated for enactment of the Orphan Drug Act of 1983. They monitor implementation of the law, especially encouraging research and development of new treatments for rare “orphan” diseases. Their most important mission is to assure that research on rare diseases is widespread and productive, leading to medicines, biologics, devices and diagnostics that will help patients with rare diseases. They support the incentives in law that stimulates companies to do orphan drug research. They want safe and effective products to get to market as quickly as possible. This legislation paved the way for pioneering companies like Genzyme to develop innovative products to treat very rare diseases. There are now hundreds of companies researching and developing therapies for rare diseases.
The Genzyme team has raised more than $125,000 over the four years running for NORD. Please help us make this year just as successful. No donation is too small. We appreciate your support.
To make a donation, please click on donation link at the top of the page.
To learn more about the Genzyme Marathon Team, Go Directly to Genzyme Marathon Team Website (http://runningforrarediseases.org/).
Thanks in advance,