I am running the Columbus Nationwide Half-Marathon to raise awareness for a rare disroder called Prader-Willi Syndrome, which my buddy Mack has.
Mack is the 4-year old son of one of my closest family friends. He suffers from Prader-Willi Syndrome (PWS), a rare disorder affecting 1 in 12,000-15,000 people. The long and short of PWS is as follows:
PWS is a complex genetic disorder affecting appetite, growth, metabolism, cognitive function and behavior. It is typically characterized by low muscle tone, short stature, incomplete sexual development, cognitive disabilities, problem behaviors, and the hallmark characteristics—involuntary and uncontrollable chronic feelings of hunger and a slowed metabolism that can lead to excessive eating and life-threatening obesity. Those who have PWS need intervention and strict external controls, including padlocking access to food, to maintain normal weight and to help save their lives.
Your donation and support will help us get closer to curing this rare disorder.
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Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!