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$15,000
goal
$14,315
Raised so far

95 % to goal

NEUROFIBROMATOSIS INC NORTHEAST

Coast to the Cure Road Course Ipswich, Massachusetts
Training buddies Team Riding For Roo

Donations as of November 23, 2014:

$490.00 Raised Offline
$13,824.69 Raised Online
$14,314.69 Total Raised

Michelle (Hirsch) Donovan

If you haven't already - please meet Riley - or "Roo" as we sometimes call her (see picture). Riley is my 7 year old daughter, and 2 years ago Riley was diagnosed with Neurofibromatosis, type 1 (NF1) - a genetic syndrome associated with the chronic growth of tumors on nerves throughout the body, bony abnormalities, and learning disabilities, that affects 1 in 3000 people (see www.nfincne.org for more information on NF).

The news of Riley's diagnosis was of course heartbreaking for my husband and me. How could anything be wrong with this energetic, outgoing, beautiful little girl? Nevertheless, with genetic testing, x-rays, a head-face-neck-spine MRI, and numerous appointments with 8 different specialists at Children’s Hospital in Boston, Massachusetts, Riley's situation would continue to unfold, and we found out that Riley has two non-resectable tumors (plexiform neurofibromas) that are tracking along cranial nerves. What we don’t know, however, and what is most concerning for my husband and me, are the HUGE numbers of remaining 'unknowns', such as: Are Riley’s tumors still growing, and how many more tumors will Riley get as she gets older? How will Riley’s situation affect her academically, physically, and socially? Finally, what options will we have over the years to minimize the problems associated with Riley’s syndrome? The latter question is where you can help me the most.

For the second year, I have committed myself to train and ride "Coast to the Cure", a 100-mile bike ride so that I can spread awareness about NF, while also raising funds that will help support NF research, families and children. There is still so much to know, so much to understand, and so much to learn about NF and its many related diseases, and I know both as a mother to a daughter with NF1, as well as a physician (surgical pathologist) who works daily in the field of cancer and translational oncology research, what kind of affect financial support can have on numerous levels.

So, I am asking you to donate to my "Coast to the Cure" ride. Please help NF, Inc Northeast and the researchers address the issues that can help my daughter and so many others who are affected by this devastating disease live a better, healthier, and more normal life. Please, think about our Riley. She, like all children with or without NF, deserves the best out of her life, and your support of this ride is a step in the right direction for all those who are affected by NF.

With sincere gratitude,

Michelle

(Thank you for visiting my Personal Fundraising Page. Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to our fundraising efforts. Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!)

 

Supporters

Comment Donation
Theresa Hulse

Trev Flood Go Michelle!
Jeff Peterson, MD
The Radley Family
Joseph Hirsch Great job today for Riley and all the others who have NF. Glad you got back safely. Dad
The Hirsch's (L.A.)
Juan Miguel & Hannah Mosquera Go Michelle!
Tracee and Jamie Regan Good luck!!!!
Hillary & Mr. Darcy Love you Riley! Good luck & have fun ~ allez allez!
Stefani (Kelso) Cozine Thinking of you and your family Mush!
Marisa, Branch, Julian and Cole Have a great ride!
Frank, Mandy, Chloe and Liam Donovan Good luck with the race!
Mara&Glauco Coelho Good luck and all the best!
Anonymous
KARL & MARGIE BEIERSCHMITT GO FOR IT MICHELLE: WE ARE PROUD OF YOU.
Jennie Keniston Good Luck!!
Amy, Greg, Griffin and Savannah You guys rock!! Ride on!!
William Welch Proud!
Anonymous Michelle, we wish you a great ride! We love you and your family!!!
Loughnane Family Have fun riding!
Anthony and Diane D'Amico
Liz and Jim Cicchese Good luck Michelle in your race to save other children like Riley.
rebecca cohen Best of luck Michelle!!
Debbie Lindsay
Ellen Freeman Roth
Daniela Dinulescu aqqqswz2, have a great ride!
Adam Kibel
Paola Dal Cin
Paul Masry
Ursula Matulonis Michelle: have a terrific ride!
Teresa and Ron Bardawil We're rooting for you and Roo!
Andrea Richardson Have a great ride!
AMuftu
Lisa Weinstein Yay Team Donovan!
James Mink Glad I finally got to meet Riley! Good luck!
Abby and Mark Hornstein Best of luck for a good cause!
Jerome P. Richie, MD
Alexi Wright and Ingrid Katz Good luck! Be safe...
Anonymous I hope the day is cool, the pavement smooth and the bike works!
Chris Crum Wishing you the very best from Chris and Tucker
Lynette Sholl Go Michelle!
The Inkmans Have a great ride!!
Justine Barletta
Have a great ride! Love, Dot and Sel
Joe McHallam Have a great ride
Ross Berkowitz wish you much success
Serene Srouji and Neil Horowitz
David Kindelberger
Philip Kantoff

Donation Summary

Raised Offline
$490
Raised Online
$13,825
Total Raised
$14,315