Hi Everyone! – Thank You for visiting our page.
Lauren & I would like to invite you to our Huntington’s “Team Hope Walk” on Saturday July 21 in Twinsburg. This exact day is meaningful, since it was 10 years ago that my wife & Lauren’s mother, Jean, passed of Huntington’s disease.
We encourage you to come out & walk with us this year (some of you donated to Jessica & Bryce’s Walk, if so come walk with us, no further donations requested). Walk registration fee is $20.00, on the registration page please hit "join a team" and then join ours.. If you can’t make it that day we would appreciate any donations to support our fundraising walk & HDSA. All money goes to The Huntington’s Disease Society Of America and will be used primarily for research, educating health care professionals and helping Huntington’s families. It is fully tax deductible. We have a short time & a long way to go, to end up leading our category as we have done the past 2 years.
Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to our fundraising efforts. Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!
We learned of exciting research news at our National Convention 2 weeks ago. Gene Silencing is becoming a real promising avenue along with many other lab trials which need our funding, let's keep research rolling!
When you support HDSA, you join an ever-widening circle of family and friends who value HDSA’s mission: to provide resources for care and treatment of people with HD and their families, fund research on HD and educate the public and healthcare professionals nationwide.
You bring hope to everyone in the circle. Huntington’s Disease (HD) is caused by a mutation on a chromosome which eventually leads to the death of cells in the region of the brain that controls movement and cognitive control. Symptoms vary from person to person, even within the same family. At later stages of HD, every individual affected by the disease requires full time care. That means that HD impacts more than the person affected; it changes life for family, friends, caregivers, medical professionals who treat the HD patient.
Huntington's Disease Society of America (HDSA) is the only national voluntary health agency that provides support and services to persons with Huntington's Disease (HD) and their families through a national/regional structure. . HDSA is committed to funding research that will lead to improved treatments and, ultimately, a cure. HDSA supports 17 major HD laboratories in North America and Europe through the HDSA Coalition for the Cure and provides 23 grants and fellowships to young investigators just starting out in the field of HD research.
HDSA also leads in providing care for HD patients and their families at our 21 Centers of Excellence. HDSA's 12 regions and 37 chapters and affiliates plus 160 support groups help educate the general public and healthcare professionals. This dedicated circle of people provides networking and information and creates fundraising opportunities through a wide range of exciting and worthwhile events nationwide.
Thank You - Mickey LaRosa and Lauren LaRosa
Location - Dodge Intermediate School, Twinsburg, Ohio