Andrés - just back from his honeymoon - had his fourth NF-related surgery in late July. Andrés has access to continued excellent follow-up care but not everyone is as lucky, and there still is a lot left to be done in the search for better treatment options and a cure for NF. Despite this, government funding for NF research has been cut 65% over the past four years.

 

You might be surprised to hear that NF is more prevalent than cystic fibrosis, muscular dystrophy, and Huntington's disease combined. NF is a genetic disorder that can cause uncontrolled tumor growth anywhere in or on a person’s body at any time. NF affects both sexes and all races and ethnic groups equally, and can cause deafness, brain tumors, learning disabilities, disfigurement and cancer.

 

This is why I am asking for your support as I ride in the 5th Friends Ride for Neurofibromatosis on the 12^th of September, along the length of Cape Cod, MA. A growing number of friends and supporters from all over the USA will be participating. Your donation will go to promote NF research through the Harvard Center for NF and Allied Disorders (www.cnfad.org). 

 

Thank you so much for your support!

Miguel Lessing

 

To visit Andrés’s medical diary, go to http://www.carepages.com/, click “Visit a CarePage” and enter his name “AndresLessing”.