THANK YOU FOR YOUR CONSIDERATION!
2010 and I am ready to keep this page rolling! My friends and family have been so generous in their donations. WOW! Your donations are used to further awareness about Fibromuscular Dysplasia, fund research and find answers that a few years ago were not thought possilbe
FMD was once thought of as a rare disease. But now with your donations, the medical community studying this disease no longer believe that is so. It is now generally thought that FMD is either overlooked or misdiagnosed. I know about overlooked. I have suffered from hypertension since a teenager. I was not diagnosed with FMD until I was 39 years old. Because of this I lost my kidney in 2007. I count myself lucky that I was not struck with an event such as a stroke during this time that I was not being monitored. Once diagnosed I have had regular checkups and preventive steps to keep abreast of FMD.
Your donations continue to support The Fibromuscular Dysplasia Society of America. This non-profit organization continues to spread the word. In 2009 we made the front page of the Wall Street Journal, and FMD was a featured story on the TV show Medical Mysteries. FMDSA has also continued it's efforts to support the Registries at the Cleveland Clinic, Mayo Clinic, University of Michigan, and Mt. Sinai, just to name a few. These Registries are compiling crucial patient information that will help to find answers about this disease.
Together we can make sure that others do not have to go years without a diagnosis. This delay in my treatment cost me a kidney. Let's spread the word so this does not happen to anyone else.
Thank you for taking time to learn about this disease and FMDSA. If you would like to learn more please visit FMDSA.ORG, where there are more patient stories and valuble information. Here is a link to my story.
http://fmdsa.org/story3.html
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!