Thank you for visiting my fundraising page!

Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.

You can donate as little as one dollar because every dollar counts towards finding a cure for me and everyone with NF.

Many thanks for your support -- and PLEASE don't forget to forward this to anyone who you think might want to donate too! 

Don't forget to watch my video on this page.

Here's my story:

My name is M’Kenna Walburn Heins.  I am almost 3 years old and I was born with Neurofibromatosis 1 (NF1).  My mom was concerned because I had brown spots that kept growing on my body.  Some of them looked like what most people call birth marks.  My parents took me to the dermatologist at Children’s Mercy Hospital and the doctor told them that the bigger ones are called café-au-lait spots and the smaller ones under my arms are called freckling which is two of the signs of having NF.

In April 2008 I had an accident while playing with my cousin and the doctor thought I broke my left leg.  After being in a cast for six weeks the x-ray showed that my tibia was still bowed.  We went to the pediatric orthopedic doctor at Children’s Mercy and she told my mom I had tibia bowing in my left leg which is another sign of NF.        

My parents took me to the genetics doctor at Children’s Mercy.  I was diagnosed with NF November 2008.  My parents have never heard of NF before I was diagnosed.   

Most people have never heard of NF even though it is a condition that affects 1 in 3,000 births.  Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the covering of the nerves anywhere in the body at any time.  NF can cause cancer, hearing loss, learning disabilities, epilepsy, bone deformities, vision impairment chronic pain and even death.  Currently there is no cure or effective treatment for NF.  For more information go to www.ctf.org

You see it is important to raise awareness and raise funds for research to help find a cure for me and others like me who live with NF.  So please join us June 26, 2010 to make our walk successful. 

Please help and donate online or you can also help by sending your check and in the memo please write my name (M'Kenna Walburn Heins) and 000K:

NF, Inc.

P.O. Box 66884

Chicago, IL  60666

Your donations are very much appreciated and they do make a difference!

Thank you,

M’Kenna Walburn Heins