Our little princess, Quinn, was diagnosed with Rett Syndrome in May 2006. She has a dynamic personality and an amazing drive
to learn new things each and every day. Her smile lights up
everyone’s eyes and her giggle fills the room with
laughter. We marvel in her quiet charm and delight in each of
her accomplishments.
Quinn struggles continuously to find alternate ways around
the challenging and debilitating symptoms of Rett Syndrome. She has diminished motor skills, limited use of her hands, and as with
many of our girls has most recently started having seizures. Quinn
does walk independently and enjoys being around her "friends and family". Rett Syndrome has taken away many things from our little girl like talking, feeding herself, and independence
but it has not taken away her loving spirit and infectious giggle.
Despite the fact that RS has taken away her ability to
communicate verbally, Quinn is very social. Her signature
greeting includes batting her beautiful blue eyes and big
smile while coming in for a closed arm hug and an open
mouth kiss.
Quinn is in the 3rd Grade. She loves school, learning, and spending time with her friends. Any mention of the bus brings excitement and delight to her face. She is a very busy girl both at school and at
home. Her favorite activities include swimming, watching her favorite videos, listening to music and going "out to eat".
Quinn adores her 2 brothers, Ryker and Spencer. They love to act up for her and act "silly". She laughs hysterically whenever they get into trouble: A true sister.
Our hope is that someday every family will live in a world
without Rett Syndrome.
Let’s all work together to help make that happen!
To learn more about Rett Syndrome visit http://www.girlpower2cure.org/who-we-are/rett-syndrome.aspx
Thank you for visiting and Many Blessings to you
Cliff, Niki, Quinn, Ryker & Spencer Tebbe
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