Paul Brunskow's Fundraising Page for MagicWater
Thank you for visiting my fundraising page!
I'm raising money to help kids with neuroblastoma. We lost our 9 year old daughter Eden to neuroblastoma about eight months ago. I'm committed to helping fight this horrible disease so others do not need to go through what Eden went through. The current options for relapsed neuroblastoma are dismal at best. There is no known cure for relapsed neuroblastoma and the drug companies have little interest in seeking new therapies, as there are not enough kids with it to justify the investment.
The concept for this fundraiser came from Eden's favorite day of the year. She loved Halloween, and she loved the color orange. What better way to get into the spirit of Halloween then dying my hair orange a few days before Halloween. It's my great hope that people ask me "Why is your hair orange?" so I can tell the story of Eden and what "HallowEden" is all about.
It's up to us to better the lives for the children fighting this disease. First and foremost, kids cannot wait years for new therapies to emerge - they simply do not have the luxury of time on their side. In an effort to help kids today, we are focusing our effort on two fronts. First, we are researching currently approved FDA drugs against different neuroblastoma cell lines to identify promising drugs that already exist. This effort has already proved very promising as we have recently identified two agents that when combined, simply blow away any chemo combination that currently exist (and neither of these two agents are chemo drugs!). We will be moving this research from in-vitro into mouse models in short order. Second, we are investing in personalized medicine. What is personalized medicine? To us, it means that each childs disease is unique and will respond differently to different therapy. We are investing in a personalized medicine study to actually take a childs disease, run it through complex testing to identify specific disease characteristics, and use this critical information for selection of therapy. The best therapy is the one that works!
Please help us fund these studies. You will be helping a groundbreaking study that has the potential to save countless childrens lives. We will solve this disease and you will be part of it! The estimated cost per child for personalized medicine is $16,000 per child. We want to initially raise funds for ten children, but hopefully we can raise much more.
All donations are tax-deductible to the full extent of the law. Our Federal Tax ID is 95-2942582.
**ORACLE EMPLOYEES** - Oracle will match donations - when donating online you will be prompted with a "Matching" box - check yes - this will make matching reconciliation much easier, as well as you will be sent an email to give to Oracle regarding the matching.
E-den: (ed'n) n. 1. A state of bliss 2. Paradise 3. A statue of ultimate happiness 4. A sweet little girl who lost her battle with cancer.