Dear Family and Friends,

When Jake was first diagnosed with Spinal Muscular Atrophy we pledged to raise much needed awareness and funds for an organization called Families of SMA.  FSMA is the largest international organization dedicated to eradicating SMA by promoting and supporting research. As many of you know, Spinal Muscular Atrophy is the number one genetic killer of children under the age of two.  People with SMA either never acquire or progressively lose the ability to walk, stand, sit and eventually move.  Children suffer increasing bone and spinal deformities and respiratory complications.

 In the last year, because of donations such as yours, FSMA has funded:

$4 million in research

2 different drug discovery programs, and

Project Cure (the clinical trial of which Jake was a participant). 

The work that FSMA is doing gives us much HOPE that a cure will be found in our lifetime!

Jake is doing well. Recently, he received his pediatric walker and we are also in the process of selecting a power chair for him for longer distances.  When we think about his struggle, the effort it takes for him just to stand up, we are always amazed by his determination.  SMA has compromised Jakes muscles BUT he does not let that stop him!  Our family has been humbled by the outpouring of support you have shown throughout the years.  Because of your prayers and generosity we are getting closer to finding a treatment and ultimately that cure.

Please consider joining us on Sunday, May 18th at Lloyd Hall for the 5th Annual Walk n Roll.  Check in is at 9:30 and the walk begins at 11:00am. You can register for the walk on this site.  Feel free to share this page with everyone you know.  Awareness is the first step to finding a cure and it is only together that we will!!

Thank You! xoxoxo

The Saxton Family