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HUNTINGTONS DISEASE SOCIETY OF AMERICA, INC. SAN DIEGO CHAPTER, CA

Bike Across America
Training buddies: Bryan Medrano, Scott Needle, John Sylvester, Coach Butch Martin

Race Across America...Team 2CURE-HD

Riding for the cure.............Are we there yet?

Thank you to the following Corporate Sponsors: Centerplate, Elan, Elsevier, Horizon Fitness, Mc Donalds, Neurome, Sun Country Builders

Team 2CURE-HD website:

http://www.team2curehd.50megs.com/index.html

I married my wife, Sharon, after having watched my father-in-law battle and eventually succumb to Huntington's Disease (HD). I always had such hope that my wife would escape the disease. Together we lived life and have two beautiful daughters. As our daughters began getting older, my wife decided she needed to have the genetic test to determine is she indeed carried the gene for HD. We did not want to burden them with the heavy load of HD unless absolutely necessary. About four years ago my wife tested positive for the Huntington's Disease gene, but had no symptoms. Amazingly, she has channeled her emotions and energy in a positive direction. She stays on top of research, clinical trials, exercises, eats right and very importantly got involved with the local HD community. She is a member of the Advisory Board for San Diego's chapter of HDSA.
Our family is at all of the events, volunteers, and raises money and awareness for HD. It is a true family affair, and the kids are growing up seeing HD firsthand. They in turn, reach out to their friends and teachers and educate them about HD. It's amazing! Sadly, my wife became symptomatic in August. She is in the very early stages and is so far having trouble with driving, balance and her judgment. This is just the very beginning of a long uncertain road. Despite the diagnosis, she is committed to putting a face to HD so people can understand better. In our family, HD is a daily topic of conversation and an open subject. Hopefully, this will allow our kids to continue to cope positively with being at risk as they watch the deterioration of their mom at a young age. Fielding a team for RAAM began as an idea that Scott and I tossed around for a while. It sounded like a great way to reach our goals, but we did not know if others would support the idea. It turned out to have the opposite effect on people. As soon as they hear about the nature of the event and our story, they feel compelled to help or donate. This event is a positive way for our family to cope, and at the same time allows us to educate one more person everyday and in the end raise money for HD research. We are desperate, so the sacrifices and pain that I will endure throughout the training and the race are insignificant. To purchase 2CURE-HD RAAM t-shirts: https://secure2.convio.net/hdsa/site/Ecommerce/1983844848?store_id=1581 To see the websites for fellow 2CURE-HD cyclists: http://www.firstgiving.com/bryan2cure-hd http://www.firstgiving.com/john2cure-hd http://www.firstgiving.com/scott2cure-hd For more on the Race Across America: http://www.raceacrossamerica.org/Default.aspx?tabid=1. To contact Renato (Sponsorship, HD, race info): rshaffer9@hotmail.com

Supporters

Comment Donation
Rick Skinner God Bless
$50.00
Peter & Gabi Jolliffe friends of Kari
$30.00
Jenny Congratulations on a Great Ride from Jen, a friend of Kari and all the Hartman's
$25.00
MORE E&CP! Keep pedaling Renato!
$130.00
Todd
$100.00
More E&CP Good luck Renato!
$65.00
Susan Davis Thank you - Praying for you
$25.00
SHARON SANTAMARIA Good Luck, Renato! Love from Aunt Muriel and Sharon Santamaria
$50.00
Tom You guys are inspiring, good luck & be safe!
$100.00
Christina Brewer You are an inspiration. We'll be praying for you. Be Safe.
$50.00
Larry and Stephanie Wattson Our thoughts and prayers are with you Renato
$50.00
steve take the downhill leg
$100.00
Sandi Carrubba Good luck Renato, we will be thinking about you
$100.00
Rob Hawk & Family Good luck to you, John, your team & your families
$25.00
Debi Carrubba Renato, I am wishing you and your team all the best. We are so proud of you!! Be safe!
$100.00
John Ferrell Good Luck and Wishing You The Best!
$50.00
Sun Country Builders We are all pulling for you!!
$5,000.00
Hugh A Friend of Kari's
$50.00
Happy Jolliffe
$100.00
Linda Simpson Go Renato and all members of the team.
$250.00
Gary & Sharida Jones We wish your family the best. Good job Renato
$150.00
Fred & Vanessa Carrubba Good luck Renato
$100.00
james jr/connie hurst We don't always understand GOD'S plans but we will rejoice in them & touch many people along the way
$150.00
Architectural Eng & Contracts Div Go, Go, Renato!!
$390.00
Stephanie Malady Good luck!
$150.00
Amy & Matt Dorman All our best to you & your family
$25.00
Angela & Rom Romero We wish you the best on your journey.
$25.00
The Cleary's
$50.00
Dwayne
$50.00
Patti Boekamp
$50.00
Anselmo & Cindy Delino Wishing you and the team good luck! Our prayers go out to you and your family!!
$50.00
Fletcher Callanta God bless you and good luck with the race. I will pray for a cure!
$25.00
Afshin Best wishes for you and your family. You are inspirational:)
$100.00
Christy Villa Good luck Renato!!!
$50.00
Hana Hanigan
$100.00
The Harris'
$250.00
Cameron Gary I'm amazed at the progress you've made over the last 18 months of riding. Being motivated helps !
$50.00
Emily Perrone We're with you in spirit, Renato....ride hard!
$100.00
maria santillanes GOD BLESS!!!
$25.00
Laura Samaniego Renato & Family; GOD Bless you all, strenght to continue your labor of LOVE & cure of HD!!
$20.00
Dick and Sharon God Speed, Renato
$250.00
Anonymous Well Wisher be strong
$50.00
The Constas Family Kick HD's butt!
$50.00
Eric
$25.00
RAMIN HATAM GOOD LUCK RENATO
$1,000.00
Manuel Gonzalez Go Renato go
$100.00
Darlene Hartmann In memory of Bruce, for Kirk and for Sharon ~ You are in my prayers.
$100.00
The Moxley's Best of luck!!
$250.00
Gromet Keep it going!
$100.00
Martinez Family God Bless!!!
$50.00

Donation Summary

Raised Offline
$0
Raised Online
$15,135
Total Raised
$15,135
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