ING NYC Marathon 2013
Dear Family & Friends,
Thank you for visiting my fundraising page!
On November 4, 2012, I was supposed to run my first marathon. Unfortunately, those plans were derailed by the devastation of Super Storm Sandy - the worst storm this area has ever seen. Understandably, the Marathon was cancelled.
So this year, on Sunday, November 3rd, I will be running my first NYC Marathon. I am running for Stop CMV. At first, I was hesitant as to whether I should fundraise again as I didn't unfortunately complete my mission as originally planned. Then I got to thinking, I didn't fundraise for me. I received no personal benefit. This is all for Stop CMV! So here I am again.
On October 11, 2004, my son Noah was born with Congenital Cytomeglavirus (CMV).
CMV, is a common virus that is usually harmless to people with a healthy immune system. However, according to the Centers for Disease Control and Prevention (CDC), CMV is the most common congenital (meaning from birth) viral infection in the United States. 1 in 150 children is born with congenital CMV in the United States. More children will have disabilities due to congenital CMV than other well-known infections and syndromes, including Down Syndrome, Fetal Alcohol Syndrome, Spina Bifida, and Pediatric HIV/AIDS.
CMV is a virus that can be transmitted to an unborn child from a pregnant mother experiencing a primary or recurrent CMV infection. CMV can cause serious disease in babies who were infected with CMV before birth. Children born with congenital CMV may develop permanent medical conditions and disabilities, such as deafness, blindness, cerebral palsy, mental and physical disabilities, seizures, and death.
In Noah’s case, he has cerebral palsy, bilateral hearing loss, decreased vision, seizure disorder, microcephaly and cognitive delays. My wife, Lynn, and I consider ourselves to be very fortunate though as things could be a lot worse. On top of it, Noah’s personality is second to none. He lights up and takes over any room that he walks into. And fortunately, he is very stubborn – so he knows no limitations. Noah’s favorite activities include playing baseball, skiing and swimming. While home, he can be found either playing Wii Ski, with his iPad or on the computer. Noah LOVES life and everything about it! I have never seen a happier child. Fortunately, we have a vast support network that includes his best friend and apple of his eye – his sister, Ashley. Ashley feels the same way about Noah and acts as a “competing mother” with Lynn. Of course, we have and grandparents, aunt, uncle and friends who are heavily involved in his life as well.
Currently there is no CMV vaccine available to prevent congenital CMV. Experts believe that a CMV vaccine is possible within the next 10 to 20 years. While there are numerous pharmaceutical industry-sponsored clinical trials for CMV vaccines, they focus on other at-risk populations. While important, data from these trials cannot be applied towards a vaccine that would target congenital CMV specifically.
Help us combat CMV by donating on my page. Last year we raised $8,300. This year, we are aiming for $10,000. The goal is more aggressive in a shorter period of time, but with your help, we can get there. No donation is too small or too large.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!