This page is no longer accepting donations
$10,000
goal
$10,420
Raised so far

104 % to goal

STOP CMV THE CMV ACTION NETWORK INC

ING NYC Marathon 2013

Donations as of October 25, 2014:

$490.00 Raised Offline
$9,930.00 Raised Online
$10,420.00 Total Raised

ING NYC Marathon 2013

Dear Family & Friends,
 

Thank you for visiting my fundraising page!


On November 4, 2012, I was supposed to run my first marathon. Unfortunately, those plans were derailed by the devastation of Super Storm Sandy - the worst storm this area has ever seen. Understandably, the Marathon was cancelled.

So this year, on Sunday, November 3rd, I will be running my first NYC Marathon.  I am running for Stop CMV. At first, I was hesitant as to whether I should fundraise again as I didn't unfortunately complete my mission as originally planned. Then I got to thinking, I didn't fundraise for me. I received no personal benefit. This is all for Stop CMV! So here I am again.
 

On October 11, 2004, my son Noah was born with Congenital Cytomeglavirus (CMV).

CMV, is a common virus that is usually harmless to people with a healthy immune system. However, according to the Centers for Disease Control and Prevention (CDC), CMV is the most common congenital (meaning from birth) viral infection in the United States. 1 in 150 children is born with congenital CMV in the United States. More children will have disabilities due to congenital CMV than other well-known infections and syndromes, including Down Syndrome, Fetal Alcohol Syndrome, Spina Bifida, and Pediatric HIV/AIDS.
 

CMV is a virus that can be transmitted to an unborn child from a pregnant mother experiencing a primary or recurrent CMV infection. CMV can cause serious disease in babies who were infected with CMV before birth. Children born with congenital CMV may develop permanent medical conditions and disabilities, such as deafness, blindness, cerebral palsy, mental and physical disabilities, seizures, and death.
 

In Noah’s case, he has cerebral palsy, bilateral hearing loss, decreased vision, seizure disorder, microcephaly and cognitive delays.  My wife, Lynn, and I consider ourselves to be very fortunate though as things could be a lot worse.  On top of it, Noah’s personality is second to none.  He lights up and takes over any room that he walks into.  And fortunately, he is very stubborn – so he knows no limitations. Noah’s favorite activities include playing baseball, skiing and swimming.  While home, he can be found either playing Wii Ski, with his iPad or on the computer.  Noah LOVES life and everything about it!  I have never seen a happier child.  Fortunately, we have a vast support network that includes his best friend and apple of his eye – his sister, Ashley.  Ashley feels the same way about Noah and acts as a “competing mother” with Lynn.  Of course, we have and grandparents, aunt, uncle and friends who are heavily involved in his life as well.
 

Currently there is no CMV vaccine available to prevent congenital CMV. Experts believe that a CMV vaccine is possible within the next 10 to 20 years. While there are numerous pharmaceutical industry-sponsored clinical trials for CMV vaccines, they focus on other at-risk populations. While important, data from these trials cannot be applied towards a vaccine that would target congenital CMV specifically.
 

Help us combat CMV by donating on my page.  Last year we raised $8,300.  This year, we are aiming for $10,000. The goal is more aggressive in a shorter period of time, but with your help, we can get there.  No donation is too small or too  large.

Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts. 

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!

Regards,

Rob
 

Supporters

Comment Donation
David & Pam Congrats on a great run!
Robert Pickus
KENNETH LEVINE
Erika Dox
The Chan Familu
Melissa Gallagher Be proud, you accomplished something that most people don't think about attempting in a lifetime and for such an important cause.
Andy Cohen You're an inspiration. Best wishes to your entire family.
Howie Weidner Stop CMV Rob!
Moe Auster Congrats Rob on your accomplishment, but more importantly on your dedication to your cause
The Stern Family We will be cheering you on in spirit. All the best!!!!!
Craig P. Millnamow Bro. Just wanted to ensure your goal, God Bless!! Delta Sig. UAlbany 179
The Ackerman Family
Robert Pickus
Anonymous
Stacey Kobell
Ted Beisler
Ann Sobieski
Mike Suba Touching story about Noah. There's no better reason to run the marathon. Good luck!
Lauren McGrath
Ilan Lipetz Very proud of you....Noah is an inspiration to us all.
Craig P. Millnamow Go Bro! Delta Sig UAlbany 179
Gary Hirsh Go get em Pickster. Don't be nervous. Think of all the non-track stars who are out there.
Brian McGrath Best of luck Rob to you, Noah and the rest of your family!!
Leon Family
Kevin Johnson Go Rob!
Jeff Hershfield Good Luck Rob!
P Faraca
Zweig Family Good luck!
Lisa
Uncle Steve and Julie Go break 4:00!
alan & sam cagan You go, boy!
Laura Avalos & Family Good Luck Rob!
Mark, Lori, Jake & Matthew Bricker Good job Rob!
Simone and Elan Levy Good luck Rob!
Sarah Weiss have a great race!! good luck!!
Jeff Luks
Anonymous Good Luck! Eat bananas during the race for cramps!
Susan Wisoky
Daniel Greenberg Check mailed directly to Stop CMV
Steven Kuptsis Have a safe run and thanks for giving us the chance to support you! ZY 190
Jennifer Smith Best of luck! ZY 1016
Peter LaMassa All the best Rob. Run like the wind.
Larry Bartimer (Delta Sigma Pi) Enjoy the race--you will never forget it--and congrats for the fundraising effort.
The Forgione Family Best of luck Rob... God speed my friend.
Rich Trueman Good Luck Rob.
The Jones Family, Chris, MaryAnn, EJ and Cat Best of Luck
Melissa Perez
Rob Elliott
The Taub Family Wishing you a great race!
The Hall family

Donation Summary

Raised Offline
$490
Raised Online
$9,930
Total Raised
$10,420
Report offensive content