I don't have Lupus - But my sister does as do some friends and acquaintances. However, I have had Rheumatoid Arthritis for 8 years and Fibromyalgia for about 6 years.
If you know me personally, then you probably know how these two diseases have affected (read that as DRASTICALLY CHANGED) my life and my marriage. You also have probably been told by either myself or my husband, Christian, The Spoon Theory, to explain why I have to ration my energy and can't just get up and go do things as I was once able to do. l found The Spoon Theory on Christines Website, www.butyoudontlooksick.com. Her use of "spoons" has been an immense help to us in trying to help someone that has never been affected by, or known anyone with, a chronically fatiguing disease or disability.
What is Lupus? Lupus is a chronic, autoimmune disease that is hard to diagnose, difficult to manage and if not treated, can become life threatening. It disrupts the immune system’s ability to protect the body against viruses, bacteria and foreign substances. Lupus’ short circuiting of the immune system’s identification process causes it to create antibodies against its own cells and tissues. There is no cure for lupus; it affects both sexes and can strike at any age. Lupus affects adult women 10 times more frequently than men and is more prevalent than Sickle Cell Anemia, Cerebral Palsy and Cystic Fibrosis, yet it is the least known of all major illnesses.
I am NOT in New York, but read in the email from Christine that those of us unable to participate in the Queens Walk-Along can be virtual 'Spoonies". So... this is my VIRTUAL SPOON WALK:) !
Thank you for visiting my fundraising page for the 16th Annual Walk-Along for Lupus! The longest running, and only Lupus Walk in New York that raises funds both for research as well as to help support the individual with lupus by providing financial, supportive, and educational programs.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts. To learn more about Lupus, the Lupus Alliance and the Walk-Along for lupus you can visit
www.lupusliqueens.org.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too! You can also tweet my page on
Twitter, share it on
Facebook, post it as a bulletin on
Myspace, or post it on
Digg.com. If you can't join the walk, or donate, join the team and create a page anyway. It's free and you can help raise money by sending the link to your friends. It's also really easy, as it is already filled in with the logo and basic info that you can add to, as you can see I have done:)
Even if you cant donate, please take a moment to pass this page on to everyone you know and help us spread the word about Lupus and the Walk-Along for Lupus. The more people who know, the more people we can help!
It has been more than 50 years since a new drug has been approved for Lupus! Your support of the 16th Annual Walk-Along for Lupus will help us all make sure that not another years goes by without progress. Thank you!
Thanks,
Robin