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I made this page in memory of my Mother Inlaw Pauline and her sister Kay, and hopes that someday they will find a cure, PLEASE help me with a donation and PLEASE spread the word. Together we CAN make a differnce.
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Lewy Body Dementia (also called Dementia with Lewy bodies) is a form of dementia that shares characteristics with both Alzheimer's and Parkinson's diseases. Lewy Body Dementia (LBD) symptoms resemble other diseases but LBD is especially challenging to diagnose correctly.
Lewy bodies are abnormal microscopic protein deposits in the brain that disrupt the brain's normal functioning causing it to slowly deteriorate. The effects include a degradation of cognitive functioning, similar to Alzheimer's disease, or a degradation of motor control, similar to Parkinson's disease. Lewy bodies are named after Frederick Lewy who first observed their effects
Lewy Body Dementia can start differently in people. Sometimes those with LBD initially have a movement disorder that looks like Parkinson's but later they also develop dementia symptoms. Others have a memory disorder that looks like Alzheimer's but they later develop hallucinations and other behavior problems. Over time most people with LBD develop a spectrum of problems that include great variations in attention and alertness from day to day, recurrent visual hallucinations, shuffling gait, tremors, and blank expression, along with various sleep disorders.
Symptoms of Lewy Body Dementia
The symptoms of Lewy Body Dementia will worsen over time. In general, LBD progresses at about the same rate as Alzheimer's disease, typically over several years. Many of the symptoms of the disorder bear a striking resemblance to Alzheimer's or Parkinson's. Despite the overlaps, however, there are symptoms that indicate the disorder is indeed LBD and not other dementias and the difference is important.
Signs of Lewy Body Dementia
Mental decline. Lewy Body patients may experience reduced alertness and lowered attention span.
Recurrent visual hallucinations or depression. Hallucinations, usually related to people or animals, occur in most LBD patients. Depression is also common.
Increasing problems handling the tasks of daily living. Tasks that used to be simple may become difficult for a person with Lewy Body Dementia.
Repeated falls and sleep disturbances. This includes insomnia and acting out dreams.
Fluctuations in autonomic processes. This includes blood pressure, body temperature, urinary difficulties, constipation, and difficulty swallowing.
Parkinson’s, Alzheimer’s and Lewy Body Dementia
Since Lewy Body Dementia is commonly misdiagnosed for both Parkinson’s and Alzheimer’s, it is helpful to understand how these diseases overlap.
Overlapping Symptoms of Parkinson’s, Alzheimer’s, and Lewy Body Disease
Parkinson’s and Lewy Body Disease Alzheimer’s and Lewy Body Disease
Some of the motor symptoms found in both Parkinson’s and Lewy Body Disease's patients include:
difficulties with balance
restless leg syndrome
Some of the cognitive symptoms found in both Alzheimer's and Lewy Body's patients include:
confusion and temporal/spatial disorientation
difficulty following directions
decreased ability to communicate
Diagnosis and treatment of Lewy Body Dementia
Being diagnosed with an incurable illness, especially one that involves dementia, can be an overwhelming experience. Because the treatment for Lewy Body dementia focuses primarily on symptom management, it's helpful to take as proactive an approach as possible right away. This means working with your physician to control symptoms and make lifestyle changes to accommodate the effects of the disease.
How is Lewy Body Dementia diagnosed?
Since the Lewy bodies themselves can be identified only by autopsy, an accurate diagnosis relies heavily on physician awareness of the defining characteristics of the disease. A brain scan can detect mental deterioration, but not the actual Lewy bodies.
Once other possible conditions have been ruled out, the optimal route for diagnosis is a thorough medical history that focuses on the pattern of symptoms and looks particularly for the hallucinations and sleep disturbances that are common to LBD patients.
What is the treatment for someone with Lewy Body Dementia?
While there is no cure at present for LBD, doctors may prescribe medication for its symptoms. Treatments are aimed at controlling the cognitive, motor, and psychiatric problems associated with the disorder, including hallucinations and depression
Medication for Lewy Body Dementia
Medications are especially challenging in dealing with Lewy Body Dementia. A medication that doesn't work for one person may work for another person. Some people with LBD may have extremely adverse reactions to certain medications.
Dementia with Lewy bodies and neuroleptics
Neuroleptics are strong tranquillizers usually given to people with severe mental health problems. They are sometimes also prescribed for people with dementia. However, if taken by people with LBD, neuroleptics may be particularly dangerous. This class of drugs induce Parkinson-like side-effects, including rigidity, immobility, and an inability to perform tasks or to communicate. Studies have shown that they may even cause sudden death in people with LBD. If a person with LBD must be prescribed a neuroleptic, this should be done with the utmost care, under constant supervision, and should be monitored carefully and regularly.
According to Lewy Body Dementia Association: Up to 50% of patients with LBD who are treated with any antipsychotic medication may experience severe neuroleptic sensitivity, such as worsening cognition, heavy sedation, increased or possibly irreversible parkinsonism, or symptoms resembling neuroleptic malignant syndrome (NMS), which can be fatal. (NMS causes severe fever, muscle rigidity and breakdown that can lead to kidney failure).
Safe medication for Lewy Body Dementia
Medication has been used successfully to relieve for symptoms of depression and sleep disorders. The caregiver needs to work closely with the patient’s doctor to come up with a safe course of medication.
Proactive ways to help someone manage Lewy Body Dementia
Taking a proactive approach to managing the symptoms of LBD is important and small things can make a big difference.
Become informed. Learn as much as you can about Lewy Body Dementia and how it is likely to affect your loved one specifically, given his or her health history, age, and lifestyle.
Create a routine. It may help people with Lewy Body Dementia to have predictable routines, especially around meal times and sleep times.
Establish a nighttime ritual. Try to establish bedtime rituals that are calming and away from the noise of television, meal cleanup and active family members. Limit caffeine, discourage napping and encourage exercise.
Modify tasks. Break tasks into easier steps and focus on success, not failure.
Walk together. Taking a walk with the patient with LBD is a win-win activity. Being outdoors and exercising is vital for health and state of mind—for both of you.
Strengthen senses. Have a doctor evaluate each the patient’s five senses in order to identify and treat any abnormalities. Then ask about exercises to improve them.
Make behavioral changes. To help minimize the risk of fall-related injuries, you can help stabilize blood pressure. Help your loved one stay well hydrated, exercise, take in adequate sodium (salt), avoid prolonged bed rest, and stand up slowly.
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