Thank you for visiting my fundraising page!
I have a Rare Blood disorder called Erythropoietic Protoporphyria (EPP). My body produces to much of a product that causes my blood to absorb to much of the Suns rays (over 20 times above Normal) causing me tremendous burning pain from the inside out.
I'm not telling you this for sympathy. I share this with you to ask for your help in supplying Information to people and the Medical Community about Treatment for this rare blood disorder.
I will be Hiking a total of 100 miles over the next 45 days on a local mountain trail (approx. 2.5 miles). Or Walking at an inside track if the Mountain is unsafe because of weather. I will be logging my miles online if you'ld like to follow my progress. My Hike will begin on October15 th, I will be Hiking/Walking every chance I get until I have accumulated the 100 miles.
This is my sacrifice for the cause, and I hope you will make a donation to the American Porphyria Foundations Physician Education Program Campaign to show your support.
EPP is such a rare blood disorder that not many Doctors know much about identifying, testing or how to treat it. Most Doctors only learn the basics about Porphyrias in Medical School.
Every visit to the Doctors office or Emergency Room I have to provide them with Information that the American Porphyria Foundation has provided me with. Both Paper and information on there website just for Medical Professionals. With out it I would not get proper treatment, because of the rareness of EPP and the lack of training the Doctors receive about Porphyria in Medical School.
These materials and Information resources are very expensive to provide.
That's where the American Porphyria Foundation comes in.
The APF is dedicated to improving the health and well-being of individuals and families affected by Porphyria.
Enhances public awareness;
Develops educational programs and distributes educational materials; and
Supports research to improve treatment and ultimately lead to a cure.
The APF also serves as an advocate on our behalf to other public, private, and government agencies interested in funding research and educational programs.
The American Porphyria Foundation is a Non-Profit Organization that requires donations to help it maintain these services.
That's why I'm asking you today to please consider making a Donation of any size to help them to continue there work.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!
Have a Great Day and God Bless!
Week 1: Day 1: 2.66 mi. Day2: 2.85 mi. Day 3: 2.59 mi. Day 4: 5.59 mi. = 13.69 miles 10/15/11 - 10/22/11
Week 2: Day 5: 5.25 mi. Day 6: 3.06 mi. Day 7: 5.26 mi. = 13.57 miles 27.26 mi. 10/23/11 - 10/29/11
Week 3: Day 8: 7.07 mi. Day 9: 3.10 mi. = 10.17 miles 37.43 mi. 10/30/11 - 11/5/11
Week 4: Day 10: 3.02 mi. 40.45 mi. 11/6/11 - 11/12/11
Week 5: Day 11: 5.11 mi. 45.56 mi. 11/13/11 - 11/19/11
Week 6: Day 12: 3.15 mi. Day 13: 5.15 mi. Day 14: 5.16 mi. = 15.46 mi. 59.02 mi. 11/20/11 - 11/26/11
Week 7: Day 15: 5.16 mi. Day 16: 3.11 mi. = 8.27 mi. 67.29 mi. 11/27/11 - 12/3/11
Week 8: Day 17: 5.15 mi. 72.44 mi. 12/4/11 - 12/11/11
Week 9: Day 18: 5.25 mi. Day 19: 3.12 mi. = 8.37 mi. 80.81 mi. 12/12/11 - 12/17/11
Week 10: Day 20: 5.30 mi. Day 21: 5.18 mi. = 10.48 mi. 91.29 mi. 12/18/11 - 12/24/11
Week 11: Day 21: 1.17 mi. Day 23: 8.65 mi. = 9.82 mi. 101.11 miles!! 12[25/11 - 12/31/11
Thank You all for your Support!!!
We did it!!! 101.11 miles!!!!
Always go the extra mile!! :-)