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PRADER-WILLI SYNDROME ASSOCIATION (USA)

Billy and Lauren Khourie
In memory of: Billy Khourie

PRADER-WILLI SYNDROME ASSOCIATION (USA)

Sarasota, FL | EIN: 41-1306908

<br><b>Description:</b> <br>Prader-Willi Syndrome Association (USA) is the most comprehensive provider of resources and support in the world for those affected by Prader-Willi syndrome (PWS). <p>PWS is a genetic condition that affects approximately one in every 15,000 people and is usually not inherited. It typically causes low muscle tone, behavior difficulties, short stature if not treated with growth hormone, and an insatiable appetite that can lead to life-threatening obesity. <p>PWSA (USA) provides direct supportive services to those affected by PWS, is the producer and depository of the most comprehensive and up-to-date collection of PWS information resources for families, medical doctors and other professionals, and funds research seeking a cure for PWS. <p> For more information, visit our website at <a href="http://www.pwsausa.org"> www.pwsausa.org</a> <p> <b>Mission:</b> <br>Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research, to enhance the quality of life of those affected by Prader-Willi syndrome.

Supporters

Comment Donation
Ryan Eastman
Robert Strom
Cody Collins & Mandy Johnson
Leslie & Cliff Hudson
Charla Moore Thanks for the opportunity to be a part of this.
Michael Aholt
Mike and Sally McAfee Ryan, a beautiful and moving gesture...great job running.
Colby Korsun
Anonymous
Peter Fryer
Zak Thompson PA
Mike and Sharon Ammon So proud of you, Ryan!
Michael Reel
Justin Dick
Jeff and Andrew Romine PA Ryan
Tyler Holland PA RT
Kristen Johnson Run, Ryan, run!
Leslie Stone
Matt Schaefer
Robin Johnson
craig
Jeff Ragan
Thy Hoang
Wrigley Go Ryan!
John Portman
Natalie Pralle
Elizabeth Polk
Bruce and Suzanne Bockus
Philip Ross We miss you Bill! Your enthusiasm brightened us all!
Jim and Kathy Stuart
Cody A BEAUTIFUL TRIBUTE TO A WONDERFUL YOUNG MAN AND HIS LOVE FOR HIS PRECIOUS SISTER - BLESS YOU RYAN
Joanne Infantino Wonderful tribute, great cause. Buena suerte!
Paige Warner Great work, Rhino!
Michael R Largent
Nancy Thompson and Henrietta McAfee Great job, Ryan!
Dianna &amp; Jim Bonfiglio Thanks, Ryan.
Maggie Pierce Maggie Pierce
Richard Nix Thanks Ryan!
Doug Nix Great job Ryan. Good luck with the marathon
Matt Montague
Patrick Rooney
Scott & Marti Stone Good Luck!
James & Dayna Boggs Keep up the great work, Ryan!
Jaclyn Dennis
Andrew Solomon
Austin Brewer
Thomas Smith
Kerby Hunt Thanks for putting this together and good luck.
Ramsey W. Drake
Austan Lee

Donation Summary

Raised Offline
$0
Raised Online
$6,344
Total Raised
$6,344