Thank you for visiting my fundraising page!
My name is Megan and I will be 8 on August 2, 2012. I have Rett Syndrome which for me means that I don't have many words for talking, I am unable to use my hands very well, I am unable to walk and I have many medical conditions.
Seizures started for me when I was 2 years old. I have had alot of ambulance rides, emergency room visits and hospital stays because of them. Currently the seizures are under control so I don't get to visit all the great nurses, EEG Techs and doctors much anymore. In January 2011 I had to have back surgery to have growing rods placed because my Scoliosis progressed and was really bad. I had many complications after the surgery and spent 24 days in the hospital when I was only scheduled to be there 8 days. My body doesn't metabolize pain medication like it does for most people. Every six months I have surgery to have the rods lengthened and I only have to stay overnight.
Despite all of that I am a very happy girl!! My family says that my eyes are my voice and my smile lights up the room.
To learn more about Rett Syndrome please visit rettsyndrome.org!
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Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!