Sean is an endurance athlete, with the muscular strength and stamina to run marathons in stride.  But his 5 year old nephew Adam was born with Centronculear Myopathy, a rare muscle disease that causes weakness, fatigue, falls and scoliosis.  Some children are severely affected by this disease but Adam is beating the odds and taking his daily challenges in stride.  Sean is running several marathons to raise funds to find a cure for his nephew and other children world wide.  He next fundraising run is November 2, 2008. Please help by making a tax deductible donation.

Questions? Contact us at myopathy@optonline.net

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!