Greetings!

We are now at 11 weeks into "training" for the Marathon, and so far so good!  As part of the program, I will be walking/running for an honor patient at the Phoenix Childrens Hospital. My honor patient has been changed as of today, for those of you who have been checking in.  

    I have been matched with Kiarrah! My inspiration, a patient of PCH in whose honor I will be running. She is 2 years old and was diagnosed with Premature - Tracheostomy in 2005& Achondroplasia at birth.  Here is her story given to my by her parent/PCH: Hello my name is Kiarrah.  I’m 2 years of age and I have a tracheostomy known as Trach.  I was diagnosed with Tracheostomy in Dec 2005.  And also I’m a achondroplasia Draw F.  Most of my life I have been in and out of the hospital.  I have had three surgeries before I turned 2 years old.  My recent surgery was shunt placement.  But through it all I thank God that I’m still here and stronger than ever.  I also thank God for my mom who had been with me from day one as she also has achondroplasia Drawism because of her I’m strong and healthy.  And I thank her.  Also I have the best doctor’s at PCH, trach and airway team.

I will try to get a picture of her, as it's been difficult to get to meet her.  I will continue to keep you posted on my training progress, so that we can all share the story of this amazing event together. I hope to meet Kiarrah soon!  Unfortunately we were not able to meet at the MIM Kick off Party..  I will let everyone know more about her and TRY to post pictures!

 

 

 

 

     I hope you will join me in raising money for Phoenix Childrens Hospital and in my huge endeavor to run, jogg, walk or maybe even drag myself thru the 13.1 miles!  Thanks to all of you for your support and encouragement! 

Remember no donation is too small :)

Don't forget to forward this to anyone who you think might want to donate also!

                               Many thanks!   Sonwy

 p.s remember donating through this site is simple, fast and totally secure.