Stephanie Baker's Fundraising Page
As many of you know our very special angel, Mackenzie Kintner, passed away on February 23, 2010 at the age of 5. Mackenzie had Cockayne Syndrome (CS); a very rare genetic disorder characterized by poor growth, premature aging, and developmental delays.
We continue to be amazed by the huge impact this tiny little girl made in the lives of so many people and we feel truly blessed to have known her. In Mackenzie's honor, we will be participating in the 3rd Annual Butterfly Walk sponsored by the Share and Care Cockayne Syndrome Network; a worldwide organization that provides much needed support to children and families dealing with Cockayne Syndrome.
You are invited to join Team Mackenzie on Saturday, October 16th at the Sanford River Walk/Fort Mellon Park. Registration begins at 4:30 p.m. and the Walk starts at 5:00 p.m. There will be food, entertainment, and a silent auction following the walk.
If you are able, please donate to this very worthy cause. Donation through the website is simple, fast, and secure. If you have any questions please do not hesitate to contact us at:
stephaniebaker@cfl.rr.com. Thank you from the bottom of our hearts!
Kevin, Stephanie, Wil, and Mallory Baker