Dear Family and Friends,
Thank you for visiting my fundraising page. It’s time to get out your walking shoes out and join for the Great Steps for Neurofibromatosis Walk! The event consists of an easy walk, snacks and raffle prizes!
I have created this page to help raise awareness about Neurofibromatosis (“NF”) and to raise funds to support NF research. NF is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in the body at any time. NF is a progressive disorder that affects all races and both sexes equally. Currently there is no cure or effective treatment.
Gracie was diagnosed with NF1 at just a few months old. She has developed some tumors and has dealt with some learning and developmental issues. Our dream is to find a cure or even a treatment for this!!! How wonderful would it be to be able to do something besides wait and see what develops?!?!
If you are unable to make it the day of the NF walk, you can still support our team by donating here.
Many thanks for your generosity. Please forward this to anyone who you think might want to donate, too!