Thank you for visiting my fundraising page!
Our son, Philip, was diagnosed with Neurofibromatosis Type 1 (NF1) in the Fall of 2011 after surgical removal of what we thought was a swollen lymph node on his neck. Since then we have been working to educate ourselves, our family, and friends, about NF1 and ensure that our son has the medical care he needs to continue to monitor his heatlh. We are blessed to be in Birmingham, AL where the top genetic doctors are on staff at UAB Genetics Clinic and maintain close relationships with specialists at our award winning Children's Hospital.
Our current prognosis is very positive, but we have learned much about NF1 this past year, and we know that this genetic disorder is a difficult, worrisome, and complex one for patients and their families. It is for this reason that we walk in support of finding a cure and improved treatment.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
Many thanks for your donation to support our efforts, as well as your continued thoughts and prayers for our son!