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$14,410
goal
$3,588
Raised so far

25 % to goal

CureDuchenne

2009 Climb to Cure Duchenne - Climbing Team Mt. Rainier,  Washington

Donations as of April 21, 2014:

$0.00 Raised Offline
$3,587.61 Raised Online
$3,587.61 Total Raised

Thomas Seoh's Fundraising Page

Thank you for visiting my Personal Fundraising Page!

Starting August 29, 2009, our passionate team of parents, rock musicians, scientists and friends will climb Mt. Rainier in Washington State (elevation 14,410 feet) to raise money and awareness for curing Duchenne muscular dystrophy.

Duchenne muscular dystrophy is a devastating genetic disease that strikes about 1 in 3,500 boys.  A gene called dystrophin, necessary for the development of adult musculature, misfunctions.  The disease is diagnosed as toddlers or pre-schoolers start to lag in their abilities to stand, walk, run and jump, and the boys are typically wheelchair-bound by age 12.  The disease is 100% fatal, as the boys suffer from respiratory or cardiac insufficiency starting in their late teens and early 20's. 

I became familiar with Duchenne muscular dystrophy while I was CEO of a biotech company in Strasbourg, France that was working on a potential medicine for this disease.  This is a particularly anxious and hopeful time, because several experimental medicines are working their way through clinical trials.  

Venture philanthropies such as CureDuchenne, that quickly, efficiently and effectively match funds with promising therapeutic approaches, are clearly accelerating the translation of scientific discoveries into medicines that can help patients.  The money you contribute will have a very REAL and TIMELY impact on THIS generation of Duchenne boys.

Our goal is for each climber to raise $14,410 ($1 per foot of Mt. Rainier's elevation).  Every dollar is welcome and will make a real difference.  Donations of $5,000 or more will receive wide media exposure in this first ever fundraising climb by CureDuchenne, including your name and logo printed on our Summit Banner.

You can read some news articles about our climb at the links provided below, and follow the climbing team on twitter.com, at "climbforacure".

Click the "Sponsor Me Now" button at the top or bottom of this page to charge your donation, or mail a check made out to "Cure Duchenne" at 3334 East Coast Highway #157, Corona Del Mar, CA  92625.  If you send a check, please mark it "Mt. Rainier - Thomas Seoh" and email me the amount at NeoKantian@aol.com in order for it to be counted on the running total on this web page.

Thank you very much for your support, and please email me if you have any questions! 

P.S. - Please forward this site address to anyone you think might want to know about this simple, clear, focused opportunity to make a REAL difference in THIS and FUTURE generations of Duchenne boys! 

Thomas Seoh

Supporters

Comment Donation
malcolm weir
$100.00
Kingsley Taft Congratulations on a successful climb!
$100.00
Nick Mitra Congratulations to the team to making it to the summit
$50.00
Jan Campbell Great initiative - glad for the chance to help you make a difference!
$50.00
Fiona Hope U help lots of Duchenne boys with this climb! U rock Dad!
$71.51
Fellow Traveller Thank you for your good heart and strong legs, for my young friend
$144.10
Christine de los Reyes Great initiative! I wish you a safe and enjoyable climb.
$150.00
Neil Exter Go for it! I wish I was in the shape to do something like this!
$250.00
Wistar Morris Glad to participate!
$100.00
Steve and Maria Bosack We're all rooting for you, Thomas! Cheers!
$50.00
Mike Leavell May the weather and the mountain be kind to you
$100.00
Lisa Gray We look forward to hearing about the climb--and the research!
$25.00
Cheryl Finney Best of luck!
$75.00
Jesse Bishop What a cool way to bring awareness and raise money!
$20.00
Bo Cosic Best in your noble mission Thomas !
$100.00
Fred and Beth Kurst Best of luck Thomas
$100.00
Wendy Hope it's a great team summit, Climb On !!
$200.00
Tim Koehl May your summit day be blessed with blue skies and success for all.
$40.00
david adelberg
$150.00
Nina Janopaul and Bart Naylor Best wishes
$100.00
Barb Slusher GOOD LUCK!!!
$100.00
Amy Factor
$200.00
Peter Spurlin
$75.00
Valerie Riddle This is an amazing thing you are doing!!!
$100.00
Peter Suzdak
$250.00
dan obrien
$100.00
Anonymous
$72.00
Anonymous
$40.00
Tom Tully Go Thomas and take pictures!!
$200.00
Will Chang Have a great climb
$100.00
Anonymous
$150.00
Lynn O'Neill and Mark Bartolozzi Best wishes for a safe climb!
$100.00
Russell Wesdyk Want pics! Good luck.
$100.00
David C
$25.00

Donation Summary

Raised Offline
$0
Raised Online
$3,588
Total Raised
$3,588
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