Hello!!! Welcome to my fundraising page!!! My name is Tiffany Lupton and I am currently training to compete in the upcoming New York City Marathon on November 3, 2013, in order to raise awareness for the Huntington's Disease community. I am honored and excited to be one of seven runners whom have been selected to compete on behalf of HDSA!!! What an incredible opportunity to raise awareness for our HD families!!!! This is an incredibly personal journey for me, as I come from a family afflicted with HD. My father Bill is gene positive and has been courageously battling this disease for years. He fights the good fight each and every day, and he never gives up. He is truly my HD hero. I have several other family members fighting the disease as well, and others who are at risk. Dad and I became involved with the HD community almost 10 years ago when we attended our first national convention together. Talk about a truly moving and life changing experience! After meeting so many incredible new friends and relating to their situations and stories , we quickly learned that we were not alone, but were now part of the greater HD family. Needless to say, we were hooked, and we continue look forward to reuniting with our friends each year. We really do have the most incredible bond, and HD has brought us all closer together. I have also been involved with the National Youth Alliance for the past 9 years and am a member of the committee. I'm extremely proud and honored to be representing our youth in NYC. When I first learned the news that I'd been selected to compete in the marathon, I could not think of a better way to face HD then to run my heart out for 26.2- yes, 26,.2 miles and make each and every step count. Many of you know that I'm a long distance runner and running is in my blood. It is a very huge part of who I am. Living in Arizona, I am up at 5 am almost every morning, and I enjoy nothing more than collecting my thoughts as I run through the desert and watch the sun rise. It is where I feel most free, and it is with each step and through all the sweat and pain that I think about finding a cure for HD.
My family is just one of the many families who stuggle with this disease each and everyday. "Huntington’s Disease (HD) is an inherited brain disorder that results in the progressive loss of both mental faculties and physical control. Symptoms usually appear between the ages of 30 to 50, and worsen over a 10 to 25 year period. Everyone has the HD gene but it is those individuals that inherit the expansion of the gene who will develop HD and perhaps pass it onto each of their children. Presently, there is no effective treatment or cure. Although medications can relieve some symptoms, research has yet to find a means of slowing the deadly progression of HD. "
**I personally want to thank you for visiting my fundraising page and for contributing to and supporting my efforts in raising awareness for Huntingon's Disease!!! Donating through this site is simple, fast and totally secure, and is the most efficient way to make a contribution to our fundraising efforts.**
Thank you for supporting me through this incredible journey!!!