Two and a half years ago I was diagnosed with systemic scleroderma but, I will not let it define who I am. I will not allow it to kick my butt. I will however, do everything I can to make sure it doesn't affect another human being.

Thank you for visiting my personal fundraising page. Donating through this site is simple, fast and totally secure.

Scleroderma, also known as systemic sclerosis, is a chronic, often progressive and devastating autoimmune disease in which the body's autoimmune system attacks its own tissues. There are 300,000 Americans with Scleroderma, and four out of five are women - usually stricken in the prime of life. The cause of Scleroderma is unknown and the length or course of the disease is unpredictable. It is characterized by swelling of the hands and feet, stiffness, overwhelming fatigue and extreme sensitivity to cold. As the skin hardens, the disease may begin to affect internal organs such as the kidneys, lungs and heart. Its symptoms can range from mild to life-threatening.

It is difficult to solicit funds for research and public awareness for Scleroderma due to the small number of patients (just over 300,000 nationally) who have this disease. It is called an "Orphan Disease" in government lingo, and as such, receives only a small percentage of the funds earmarked for research. We can only hope that someday, this disease will have a cure, but for now, the fight is still on.

And while no cure exists for scleroderma, together we can make a difference. We can stomp and we can scream. Walk with me on August 14th.

Although there is no cure, there are many treatments available. And, of course, there is always hope that in the not too distant future, medical research will find that cure. In fact, some of this research is made possible by your generous contributions. The Scleroderma Foundation is a 501(c) (3) national nonprofit organization serving the interests of persons with Scleroderma. The Foundation's chapters and support groups nationwide help to carry out its three-fold mission of support, education, and research. To learn more about my nonprofit, please go to the website-- http://www.scleroderma.org/chapter/delaware_valley/

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too! We can be the difference.