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Climb for CFS

Donations as of October 07, 2015:

$370.00 Raised Offline
$4,971.38 Raised Online
$5,341.38 Total Raised

Climb for CFS

My Journey Back:

Many of you know that I will be climbing Mt. Kilimanjaro in February 2012. This has been a dream/goal of mine since 1989 when I was in Africa and first saw the mountain.

My life changed dramatically two years later when I was diagnosed with Chronic Fatigue Immune Dysfunction. Many of you may not know of the struggles I endured to recover from the illness and to adjust my life and attitudes. The day we reach the 19,341 ft summit will be the 20 year anniversary, almost to the day, that I learned I had a chronic illness and was told the research couldn’t determine what my recovery might be.

After having to leave my job at Hewlett Packard and return to my parents home from living in Europe, spending 3 years using a wheel chair, and fighting a humiliating ordeal for eligibility for Social Security disability benefits, I slowly began to reclaim my life.

The doctors couldn’t tell me if I would recover, so I was content on believing they also couldn’t tell me I wouldn’t recover. This photo was taken near Banff, Alberta in the Canadian Rockies. I got out of the wheelchair and took 90 minutes to climb this pile of rocks. Children and senior citizens were marching by me as I persisted and fought the leg pain and fatigue. That was 1994.

This trek will be a great physical challenge but also a mental challenge. It will restore my confidence that my health is intact.

Throughout my years of illness, I struggled to find information and support groups. The stigma associated with a silly name like “chronic fatigue” has deterred research. Most support groups are led by sufferers who not only experience fatigue but also severe cognitive symptoms.
With some digging, I was able to find an active and thriving society devoted to helping people with Chronic Fatigue and helping fund research into the illness. I am raising money for the Vermont Chronic Fatigue Immune Dysfunction Syndrome Association, a non-profit group. (

My goal is to raise $5000 which will help fund a medical scholarship and continued suport of the website which helps connect the community.

Here's a message from the VTCFIDS Association President:

We would use your gift to continue and expand our educational programs. The VT CFIDS Association supports a four-pronged CFS educational program which we believe is the most comprehensive in the United States:

1.) The Medical Scholarship Program,

The VT CFIDS Association has established a medical student scholarship program to educate medical students about Chronic Fatigue Syndrome. We have sources to provide matching funds so that donations can be doubled. The medical student who writes the best essay, as determined by a judging committee, receives a remission on their second year of medical school tuition.

2.) General Public Education. We tour with our documentary film “INVISIBLE” followed by questions and answers. We offer this film at reduced costs to individuals and other CFIDS organizations for the the same purpose. Beyond Vermont, this has been done in Florida, Utah, New Jersey, Wisconsin, Massachusetts, Virginia, New York and throughout Ireland. VT CFIDS members said they have used the film to improve the attitudes of unsympathetic family members. True healing begins at home.

3.) Physician Education. The VT CFIDS Association has commenced a program of providing in-hospital Grand Rounds in the State of Vermont. Board member, Dr. Kenneth Friedman, who delivered continuing medical education courses on the subject of CFS for the Centers for Disease Control and Prevention (CDC) has developed a new course based upon the content of the soon-to-be-released Physicians’ Primer being authored by the International Association For Chronic Fatigue Syndrome/ME. The program has been accredited by the University of Vermont for both medical and nursing continuing education credits. With increased funding, Dr. Friedman will be able to deliver physician education programs throughout the state, and beyond.

4.) Patient Education. The VT CFIDS Association maintains a website, as a resource center.

Site analytics tell us that we have thousands of visitors, who spend considerable time, from all over the world. While we serve Vermont we are truly International in scope.
Persons debilitated by CFS lose sight of once active lives, lose hope with recurrent professional dismissals and lose faith with lost friendships and loves.
If you didn’t know about my illness, and have questions, I am open to talking about it. If you know someone else who suffers from CFIDS, this is a way to show support.

My Journey Back refers to my return to Africa and my return to health.
I’ll be carrying a banner to Kilimanjaro’s summit with the names of my supporters and fellow suffers. My goal is to fill the space.


Comment Donation
bill stoffel Lisa, you are remarkable!
Rick and Emily Well DONE! Congrats
Mary Lou Stein YOU GO GIRL !!
Melanie Blank Glad it was such a great experience!
marissa nicholson Congratulations
Carmel Priore-Garlock
Elisa DiPietro
Marly Silverman Reaching the heavens you will.
Mary Coe Foran gambatte!
Andrew & Alicia You're reaching the summit!
amy friend Yahoo For You!
Donna Worrell You are an inspiration!
JH VTCFIDS Over the top
JH VTCFIDS Thanks for support & good health climbing
Phyllis and Marty Korn GO, gutsy Lisa! Say hi to Kili for us!!
Martha Spinnegan What an inspiration! Wishing you the best. Martha
Elissa and Ernie Orlando
Bob Singer Take a picture on the mountain, with you smiling.
Helen, Ian and Eleanor& Mary and Gerald We know you will do it. All our love
Bob & Mary Lou Zerby Your Mom told us of your trip...way to go!
Lell and Rex Forehand Thank you,Lisa. We are on VT CFIDS board.
Joanne and Bob Everts Go get 'em, girl! You rock!!!!
Ellen Mancuso Proud and honored to be her friend every day!
Joni Halfenger Good luck! Have fun!
Chugg Family Have fun..enjoy the trip!
Jeanne Flanagan Way to go Lisa-Have FUN!!
Linda Snell I'm a friend of your Mom's. She's SO proud of you!
Jill Rowell
Mark, Lisa, Mia, Louie and Joey There may be poison ivy, bring enough TP!
Kathryn You Rock!! Good Luck!
Elizabeth & Richard Good luck & enjoy yourself - I know you can do it!
Leo and Kathy Perrault Good Luck . . . Ms. Energy!
Carol &Nina We are with you every step of the way!!
Judy Bennett Lisa, you always inspire me!
Bernice Parent I will be cheering you every step of the way.
Barry and Martha Quinn You've persevered and inspired! Enjoy the climb!
Bill & Diego This will get you to $3,500. Good luck, Lisa.
Aunt Louise and Uncle Tony DiPietro
Sam & Michael We are so proud of you!
Debbie Stocking Go for it! I know you will make it!
Anonymous Wow, Lisa! I'm impressed! May we always be 39.
Colby & Aaron Lee We love you Aunt Lisa!
Mariah Lee I love you Aunt Lisa, blow me a kiss from the top!
Donnie & Mari Lee I am proud of you and know you will do it!
cfidsWarriorSeeksPeace-Kim Kish You represent my courage and persistence.
Larry & Paul you are an inspiration Lisa!
Mary Ellen Juliano Good Luck!
Aunt Patty You have always been MY HERO!
DAD proud of u - wish I could come

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