Thank you for visiting my Personal Fundraising Page. Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to my fundraising efforts.
As you may already know, I am nine years old and have Juvenile Huntington's disease (JHD). I had an idea a couple years ago that I wanted to do something to help raise money for JHD, which is not well known or understood. I came up with the idea to do a "Pennies for Virginia's Thoughts" penny drive at my school in Pennsylvania. Unfortunately, my school wouldn't allow me to do a penny drive at school, this made me very sad.
So, we have a new idea! We're doing a fundraiser online for the Juvenile Huntington's Disease Initiative sponsored by HDSA. . This workgroup had its initial meeting at the 27th Annual HDSA Convention. There, this assembly of top international JHD researchers and clinicians outlined a plan to develop new research into the cause and progression of JHD, while developing best clinical practices and support systems for anyone currently affected. Funds will help support this group, it's work, and books, videos and other materials that are developed for families affected by JHD.
Thank you for your consideration. Please pass my page along to anyone you think might be interested in helping out my efforts!
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!
You can learn more about my story at www.jhdkids.com