Joshua is turning SEVEN on January 20th! If you have ever been to our house you know that Josh has everything he could possibly need or want. I mean come on, the kid has his own iPad, AND an indoor swing! So this year we decided to mix things up, and instead of presents, to set him up a page that will help, not only Joshua, but ALL other kids with Angelman Syndrome!!
About Foundation for Angelman Syndrome Research (FAST):
The Foundation for Angelman Syndrome Therapeutics (or FAST) is a not-for-profit organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy. The Foundation is committed to assisting individuals living with Angelman Syndrome to realize their full potential and quality of life. We are confident that our goals are now within reach and together, with your help, we will change lives.
Setting out on the mission to cure a genetic disorder requires the concerted efforts of a diverse, dedicated group of individuals. With leaders in the field of science, medicine, business, technology and entertainment, the Foundation for Angelman Syndrome Therapeutics is well poised to realize its mission
There has been such exciting research happening! They have ACTUALLY cured Angelman Syndrome in a mouse model!! There is also research, going on right now, with already FDA approved medications, on mouse models, to see if one of them could help with our children's major struggles, balance, tremors, seizure disorder...If one of those could help Joshua to balance better and be able to walk...well it would be a dream come true!!!! You could not ask for a better birthday present than that!!
Plus, it would be a tax deductible birthday gift! ;-)
Donating through this website is simple, fast and totally secure.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!