May 1, 2013
Thank you for the outpouring of support from walk participants, donors and sponsors despite the Sioux Valley walk being cancelled due to weather and park closings!
In honor of May being nationally recognized as Huntington's disease awareness month, HDSA is inspired to host a "VIRTUAL" Team Hope Walk all month long!
How do you participate in a 'virtual' walk and run? Choose a day - any day in May - and gather your team, friends, family, neighbors or colleagues and walk or run for HD virtually anywhere! Take a walk with colleagues on your lunch break!
Raise awareness by standing out for HD! Wear all blue, wear your Team Hope t-shirts, carry blue balloons, paint your face blue - do whatever it takes to raise awareness and stand out for HD! Take a picture of your 'virtual' walk and send it to firstname.lastname@example.org to be posted on facebook and our website throughout the month of May!
If you signed up for the April 27 walk, GREAT NEWS! you're already registered for the 'virtual' walk. You can still raise pledges! Make sure to contact the Chapter for your FREE t-shirt! The most creative virtual walker will win a $50 Visa gift card!
Create or support a 'virtual' team on Firstgiving, donate online at www.hdsa.org/sv or send donations to:
Sioux Valley Chapter HDSA
PO Box 2675
Sioux Falls SD 57101-2675
The Team Hope Walk is the Huntington's Disease Society of America's (HDSA's) largest national grassroots fundraising event. Thousands of families, friends, co-workers, neighbors and communities walk together each year to support HDSA's fight to improve the lives of people affected by HD and their families.
What is Huntington's Disease? Huntington's disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which, presently, there is no cure and only one FDA-approved treatment for one symptom of HD. HD slowly diminishes the affected individual's ability to walk, think, talk and reason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10 to 25 year period. Cases of juvenile HD have been diagnosed in children as young as two years of age. More than 30,000 people in the United States are currently diagnosed with HD. Each of their siblings and children has a 50 percent risk of developing the disease, therefore 250,000 are at risk.