$15,000
goal
$2,506
Raised so far
Registration has closed, but you can still donate to participants

Strike Out HD 2013

Strike Out HD 2013

The Huntington's Disease Bowl-A-Thon includes 2 games of bowling, shoes, food, drinks and prizes!

Teams consist of 5 people, each asked to raise and/or donate a minimum of $35 in sponsorship for the HDSA Center of Excellence at the University of Rochester.

Registration starts at 1pm. Bowling starts at 2pm.

Hosted by "The Mayor" Pete Kennedy!

 

What is HD?

Huntington's disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which, presently, there is no cure and only one FDA-approved treatment for a symptom of HD. HD slowly diminishes the affected individual's ability to walk, think, talk and reason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10 to 25 year period. Cases of juvenile HD have been diagnosed in children as young as two years of age. Eventually, a person with HD becomes totally dependent upon others for his or her care. More than 30,000 people in the United States are currently diagnosed with HD. Each of their siblings and children has a 50 percent risk of developing the disease, therefore 250,000 are at risk. Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD.

How do proceeds benefit HDSA?

All proceeds support HDSA’s fight to improve the lives of people affected by HD and their families.