HDSA has created a Juvenile Onset Huntington's disease (JHD) Initiative.

This workgroup had its initial meeting at the 27th Annual HDSA Convention, where this assembly of top international JHD researchers and clinicians outlined a plan to develop new research into the cause and progression of JHD, while developing best clinical practices and support systems for anyone currently affected. Funds will help support this group, it's work, and books, videos and other materials that are developed for families affected by JHD.