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| Melissa and Dad at the Finish Line |
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About my nonprofit:
VHL Family Alliance - Cancer Research Fund
The VHL Family Alliance provides information for families and physicians about this disorder, and local self-help support groups for families affected with VHL.
Most importantly, we -- everyone in the...
The VHL Family Alliance provides information for families and physicians about this disorder, and local self-help support groups for families affected with VHL.
Most importantly, we -- everyone in the VHL Family Alliance -- are active members in a symbiotic partnership with the health professionals and researchers and are making progress in understanding how VHL works, and what tactics might be helpful in moderating the course of the disease. It's only a start, but it's a great deal more than we've ever had before. With your help, we will advance farther in the next year.
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Fundraising target:
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$100,000
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So far I have raised:
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$64,775.00
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| My personal message: |
Thank you for visiting my Personal Fundraising Page.
On Sunday, July 24, 2005, I am going to set out to achieve the greatest athletic goal of my life by competing in the 7th annual USA Ironman Triathlon in Lake Placid, New York. In my efforts to complete this 2.4 mile swim, 112 mile bike ride, and 26.2 marathon run in 17 hours, I am also running this race in honor of my father, who has Von Hippel-Lindau (VHL) disease. My goal is to raise money for VHL research so that a cure can soon be found.
UPDATE: Melissa completed the USA Ironman Triathlon in only 13.5 hours! Fabulous! She had arranged with the judges for her Dad to put the medal on her neck.
She raised a total of $64,092, winning second place in the Janus Challenge, which means another $8,000 for VHL research.
THIS PAGE IS STILL ACCEPTING DONATIONS in honor of Melissa, her Dad, and her extra-ordinary achievements!
Many thanks to everyone who contributed, both here and through the VHLFA office. Your support is so important! We need all our friends to find a cure.
Thank you!
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