Welcome to the IRSF Care and Cure Café!
Join the many families and friends that have visited these pages and shared stories and special wishes for the Rett angel that has touched their lives. This virtual café has not only been used by families as a place to fundraise in honor of their angel – but it’s served as a community for friends and family of these girls to let the parents know just how inspiring and special their angels really are! And as of January 2010 the Care and Cure Cafe has raised over $50,000 for Rett syndrome research! Thank you to everyone who has joined us in our mission.
We have moved the Care and Cure Cafe to First Giving in order to let YOU personalize your angel's pages! Donations will show up immediately and you can share updates and new pictures quickly and easily. For further instructions on how to set up your page or if you have questions please contact Jenni Grammer at IRSF - jgrammer@rettsyndrome.org or 513-874-2657.
For more information about Rett Syndrome, please click here for a PSA from Clint Black.
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Rett syndrome is the leading genetic cause of severe impairment in girls… The amazing breakthrough in science is the ability to reverse Rett symptoms in an animal model...
Thousands of girls and women world-wide are undiagnosed or misdiagnosed with cerebral palsy or autism… |
A girl is born every two hours with Rett syndrome...
The most severe handicap in Rett syndrome is apraxia, which means the will to move is present but there is an inability to carry through with movement...
Rett syndrome is the only autism spectrum disorder with a known genetic cause... |
Girls and women with Rett syndrome have unusually bright eyes
and seem to understand more than they can express...
