whitley levy's Fundraising Page
Page Creator: whitley levy
Event: Team Hope Walk/Run - Houston, TX
Event Starts: Oct 10, 2009
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The Levy family
About my nonprofit:
Huntington's Disease Society of America Inc. Texas Affiliate, TX
Huntington's Disease Society of America (HDSA) is the only national voluntary health agency that provides support and services to persons with Huntington's Disease (HD) and their families through a national/regional...
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Fundraising target: $1,500
So far I have raised: $2,210.00
Fundraising progress
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My personal message:

The 5K Run/Walk to Cure HD is on October 10th

Billy and I work with a small group of volunteers who organize this race each year to raise money for the Huntington's Disease Society of America.  Huntington's Disease (HD) took my dad in 2006.  The funds are for research for a cure and for helping families affected by the disease in Texas. 

Because my father had HD, I have (and each of my 4 siblings has) a 50% chance of inheriting this debilitating disease that would leave us dependent on round-the-clock nursing care to assist us in basic functions like dressing, eating, and bathing. There is currently no real treatment or cure for the disease and in most cases it strikes between the ages of 30 and 50.  We could lose our families and they could lose us.   For me, it could be soon.  As most of you know I have chosen not to test, and to continue to hope for the best, but 50-50 odds and my advancing age make it scary for me and for each of my siblings.  It would be an absolute miracle if none of us got it.

The event is super fun for families as well as competitive runners, though!  You can register at www.runtocurehd.com or donate here.  This year we especially want to thank: Rice Epicurean Markets and General Truck Body for thier generous donations!  If you'd like to join them in supporting this cause, you can do so below.  Every bit counts, so don't hesitate to make a $10 donation, it helps me toward my goal!

We thank you sincerely for your support here and in our everyday lives!

Whitley Levy


Online Sponsors to date:
Display Name Date Amount  Comment
Dr. and Ms. Ron Rapini 10/9/2009 $500.00 Your care has become other's gift. 
Ellen 10/6/2009 $75.00 Great work - have a great run! 
Kristy, Lee & Taylor 10/2/2009 $250.00  
Daniel & Melissa Levin 9/27/2009 $25.00  
Allie Levy 9/26/2009 $500.00 I'm so proud of you both! 
Jessica and Eric 9/14/2009 $250.00 Peace, Love & Respect 
Barry Novy 9/3/2009 $100.00  
Joanne & Bruce 9/2/2009 $75.00 Go Whitley! 
Marta and Allen 8/28/2009 $250.00 We really miss you guys! 
Lisa & Tommy 8/28/2009 $50.00  
Robin Goetz Chwatko 8/27/2009 $10.00  
Maura 8/26/2009 $100.00 Love you guys and love this picture! 
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* Total raised online: $2,185.00
Amount raised offline: $25.00
Grand Total: $2,210.00
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