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3rd Annual Mark Noah Balloon Walk for SLOS
Page Creator: Mark Noah
Page Closes: Jan 19th 2009
Fundraising Page Image
Mark Christopher Noah -- 4 years old
About my nonprofit:
Smith-Lemli-Opitz-Rsh Foundation
The Smith-Lemli-Opitz/RSH Foundation was created in 1988 to give a group of 37 families with SLO/RSH children a network to exchange experiences and information about SLO/RSH. Since then, the group has grown...
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Fundraising target: $20,000
Total raised so far: $18,716.00
Fundraising progress
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My personal message:

Dear Friends and Family!

It's me again... Markie Noah from Fargo, North Dakota .  Let me start off by saying a HUGE THANK YOU to all of you who have come with us on our journey towards finding a cure for my syndrome - Smith-Lemli-Opitz Syndrome.  Because it is so rare... there are only a handful of families that raise desperately needed dollars for research.  Your 100% tax deductible donation will be sent directly to the SLO/RSH Foundation, a great non-profit foundation that is dedicated to raising SLOS awareness and providing grant money to specialists dedicated to SLOS research.  It is amazingly run solely on volunteer power to ensure that as much money as possible goes towards finding better treatments for our children.  

3rd Annual Markie Noah Balloon Walk - we're hoping that it will be our best WALK yet!  Mark your calendars for:

Saturday August 30th, 2008   ( LINDENWOOD PARK - MAIN SHELTER, Fargo, ND )

Registration begins:  10:30am

Walk begins:  11:30am

 

 

 

 

Free Lunch:  12:00pm  (Hot dogs, Breadsmith Cookie Bars,  Veggies/Fruit, Lemonade)

 

 

Love, Markie 

 

We hope you can come and join us for a great lunch and a relaxing afternoon of fun.  For those who cannot attend and still wish to donate to the cause...
donating through this website is simple, fast and totally secure.  Many thanks for your support -- and don't forget to forward this LINK to anyone who you think might be interested in helping.


Online Donors to date:
Display Name Date Amount  Comment
Scott and Ani 9/13/2008 $50.00 Goooood luck! 
Parke Memorial UMW, Parkton, MD 9/12/2008 $50.00 In honor of Benjamin and Jacob Nupp 
Alicia Payne 9/10/2008 $25.00 For Jared Wulfekuhle 
Britt, Debbie, Shastina and Chloe 9/9/2008 $100.00 You are in our prayers  
Pat Langer 9/8/2008 $25.00  
Ann, David, Jules, Daniel & Natalie 9/6/2008 $50.00 Markie - you and your family are in our prayers! 
Shelli, Jon, Helen and Jessi Porterfield 9/4/2008 $100.00 Friends of Jukie 
Dee Ann Schnacky 9/4/2008 $25.00 I hope the race went well! We love guys!!! 
Mike & Shelly Selby 9/3/2008 $300.00 Love and prayers to Markie and the Noah family. 
Michelle Olson 9/3/2008 $50.00 Relatives that have this condition 
Doris Thompson 9/2/2008 $25.00 In honor of Benjamin and Jacob Nupp 
Todd Schlossman 9/2/2008 $100.00  
patrick delapointe 9/2/2008 $125.00 Hi Noahs, Keep us in the loop.. keep sending us literature on the Walk , thanks.........Patrick 
Samantha K 9/1/2008 $25.00 for my friends Benjamin and Jacob 
Jeanne & Jim Ford 8/31/2008 $50.00 In honor of Benjamin and Jacob Nupp 
John and Kim Nupp 8/31/2008 $50.00 Way to go Noah Family! This is in honor of our sons Benjamin Daniel and Jacob Andrew Nupp 
Vanessa, Mark and Max 8/29/2008 $50.00 We can't be there to walk with you on Saturday but we'll sure be thinking about you! 
Shane 8/29/2008 $200.00  
pete mathison 8/28/2008 $100.00 Good Luck at the Walk.... can't make it, but have fun! 
justin chien 8/28/2008 $100.00 In Charlotte Bella's name. Let's find a cure! 
Ernesto, Yadira & Xavier 8/28/2008 $25.00 God bless you little Charlotte Bella 
Maren Ortmeier 8/28/2008 $100.00 Sorry we will be out of town on the big day- hope it is a huge success 
Chris and Karin Meier 8/28/2008 $25.00  
xochilt 8/27/2008 $25.00 In the name of Charlotte Bella Ufret 
2008 Great River Relay Assorted Nuts 8/27/2008 $25.00 Hi Markie! GO NUTS!!!! 
Grammy Jo and Bob 8/27/2008 $100.00 Go, Markie!! You're one cool kid! 
Stephen William Markham 8/26/2008 $50.00 For Jared Wulfekuhle. Your the best! 
Brad, Lisa, Maddy and Emily 8/26/2008 $100.00 Sorry we will miss the walk! 
ARTEKTA inc. 8/25/2008 $100.00 Go Markie! 
Liz B 8/25/2008 $25.00 Friend of Julie Heiman; for Sean. Great job Markie!! 
Matt & Susan Noah Family 8/23/2008 $250.00 We love Markie! 
Mary 8/22/2008 $100.00  
Kevin 8/22/2008 $50.00  
Catherine Krause(friend of Julie Heiman in Denver) 8/22/2008 $25.00 Good luck!  
Pat Meier 8/22/2008 $25.00 What a great little boy you are! Congrats on the walk. 
Drake 8/22/2008 $100.00 Given in the name of Dr. Andy, Kate and Jackson Jones 
Christopher Boss 8/22/2008 $100.00 Hello to Berkeley CA, from 60035. Thanks for asking! 
Kevin Quinn 8/22/2008 $25.00 friend of Jukie's  
Connie Steele 8/21/2008 $50.00  
Jim & Carolyn Duren 8/21/2008 $100.00 feels good to be a part of this 
Tim, Kim, Jonah, & Isabel 8/21/2008 $25.00 Research is everyone's future-this is for Jared 
Wanda, Jeff, Austin & Mariah Pape 8/21/2008 $25.00 in honor of Jared Wulfekuhle (Alliant Energy will also be donating $25 in our matching gift program) 
Tom & Carolyn Espel 8/21/2008 $50.00  
Kristi Klein 8/21/2008 $200.00 Friends of Jared Wulfekuhl 
Scott, Michelle, & Hunter Weyant 8/21/2008 $25.00  
Dan and Jolene Koopmann 8/21/2008 $25.00  
April Crowell 8/20/2008 $25.00 Friend of Julie, Kim and Sean Heiman. Sean also has SLOS. Good luck with this incredible effort!! 
Kate Roberton 8/20/2008 $50.00 with love to jukie and markie, and their amazing families! 
Anna Johnson 8/20/2008 $100.00 My donation is given with huge, heartfelt hopes. 
Beth & Robert Post 8/20/2008 $100.00 with love to Jukie & his family 
Spencer 8/20/2008 $25.00  
John Haveman 8/20/2008 $250.00 Sorry we can't do the walk; hope it is a great success. 
Jon and Linda Morris 8/19/2008 $30.00 Blessings from Boise! 
Ryan Hale 8/18/2008 $100.00  
Julie, Kim & Sean Heiman 8/18/2008 $150.00 In honor of Sean Heiman and Mark Noah and all kids with SLOS 
Judy & Gary Kubalak 8/18/2008 $100.00  
Amy & Eric Moon 8/17/2008 $200.00 Wish we could join you for the walk! 
Geneva "Boonie" Duren 8/15/2008 $4.00 Hi Markie. I really miss you. I'm sure that you're taking good care of Oliver and Baby Oliver.  
Kate Duren & Andy Jones & JUKIE! 8/15/2008 $100.00 We love you Markie - have a great time at the walk! 
Drs. Steve & Teri Johnson 8/14/2008 $50.00 Have a great day!! 
Hector & Eileen Ufret 8/12/2008 $50.00 In honor of our little Charlotte Bella 
Connie restemayer 8/12/2008 $25.00 Good luck Markie 
Michelle Enockson 8/11/2008 $15.00  
Joan & Shawn Britt 8/11/2008 $25.00 For Jared Wulfekuhle 
Renee Gravalin 8/8/2008 $50.00 I hope the walk goes well. We won't be able to make it, but I am sure it will go well! 
Gehl Family 8/7/2008 $50.00 For Jared Wulfekuhle-- We love you buddy!! 
Joanne Quinn 8/7/2008 $50.00  
mike & sheryl deconcini 8/7/2008 $100.00 We wish you a successful walk and send our good wishes to your family! mike & sheryl deconcini 
Jeremy & Melissa Wulfekuhle Family 7/14/2008 $50.00 For Jared and all SLO kids that one day there will be a cure 
Don & Cheryl Cook 7/13/2008 $50.00  
Mary Reeg (for Jared Wulfekuhle) 7/9/2008 $25.00  
Bob & Norma Mihalak 6/26/2008 $25.00 In memory of our Jennifer (SLOS) 3/25/74 ~ 1/24/08  
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* Total raised online: $5,149.00
Amount raised offline: $13,567.00
Grand Total: $18,716.00
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