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Hello Family and Friends. I am hoping to raise money for the Fibromuscular Dysplasia Society of America. Please check out their new webpage at FMDSA.ORG where you can learn more about this disease. I know that these are tough times for all. But if you would consider a small donation, your contribution will go far! I thank you in advance for considering my request.
Most of you know that I had my kidney removed two years ago this month.. But did you know it took over 22 years for me to be diagnosed with the disease that caused it's demise? Not only did I have my kidney removed, but now with over 35 years of hypertension I have damage to my major organs. I also have FMD in my carotid and mesenteric arteries. This does not have to happen to others. Thanks to the efforts of FMDSA, there is exciting news in the efforts to learn more about this disease and educate the medical community.
Due to the efforts of FMDSA, The University of Michigan is starting up a patient registry. This will enable doctors through out the US to register their FMD patients so that research can be done. But the cost of the registry is over $60,000 dollars a year.
FMDSA was also instrumental in prompting the Cleveland Clinic to open the Nations first FMD Clinic. I will be going in June to finally have a doctor who is famiiar with FMD examine me. I was told when I was first diagnosed in 1996 there would never be research in my lifetime. Because of the efforts of FMDSA, there is now hope for myself, my fellow FMD'ers and any other family members that may one day get diagnosed with this disease.
I hope that you take the time to check out FMDSA.ORG
Thank you for considering my request!
Sincerely,
Mimi Petersen
One Kidney Gal in Northern Cal
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!
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