HDSA also leads in providing care for HD patients and their families at our 21 Centers of Excellence. HDSA's 12 regions and 37 chapters and affiliates and 150+ support groups help educate the general public and healthcare professionals. This dedicated circle of people provides networking and information and creates fundraising opportunities through a wide range of exciting and worthwhile events nationwide.
Well it is that time of year again. I have talked myself into running the Rock And Roll Marathon. Yep all 26.2 miles. I know I said I would never do it again but a cure is not possible without money!!! So last year I ran this race in honor of my mother and this year I will run this race in her memory. I know she was proud of my achievment and will be with me this time around. So I know some of you may not know what Huntington's Disease is, so here is some info.
What is HD?
HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. An estimated 30,000 Americans have it, and at least 150,000 more are at risk. HD affects both sexes and all ethnic groups and strikes in the prime of life. Everybody carries the Huntingtin gene, but in some people it goes awry, leading to an attack on the brain. The final result is a slow, ugly death. Children of a parent with HD have a 50-50 chance of inheriting the condition, and the disease can start as early as childhood. There is no cure of treatment.
Why should you care?
HD causes immense suffering and loss of productivity. In San Diego alone as many as six families per month find out that HD has struck them. Thousands of caregivers across America must help the ill do the simplest tasks. Affected individuals lose jobs and insurance. But there is hope. In 1993 scientists found the HD gene. HD is on the cutting edge of biotechnology. HD research provided a boost to the Human Genome Project, and progress in HD research has generated many new investigative techniques. As scientists move towards a cure, they are increasing our understanding of the brain and having a tremendous impact on the study of cystic fibrosis, Lou Gehrig's disease, Alzheimer's, Parkinson's, certain forms of diabetes, and other maladies. Stopping HD will be a historic breakthrough leading to a better life for all.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!
See you at the finish line!!!
~Misty Oto~
