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About my nonprofit:
Noonan Syndrome Support Group, Inc.
Description: The Group is intended for people whose lives are touched by Noonan syndrome, to exchange experiences and hopes for people with Noonan Syndrome.
Mission: Members share...
Description: The Group is intended for people whose lives are touched by Noonan syndrome, to exchange experiences and hopes for people with Noonan Syndrome.
Mission: Members share experiences and exchange ideas on how to cope with Noonan syndrome. A Web site at http://www.noonansyndrome.org has a wealth of information. Also available to Internet users is an e-mail list service, offering educational and emotional support to new friends around the globe. Names of medical specialists who have worked with TNSSG in the past, is available upon request.Newsletter - The Noonan Connection is published on a quarterly basis Public Awareness - TNSSG helps fight misconceptions about Noonan syndrome and lets others know that help is available.
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Fundraising target:
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$10,000
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Total raised so far:
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$675.00
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| My personal message: |
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It’s one thing to wish for and harbor a vision toward a brighter future for the children and families affected by a rare disorder like Noonan syndrome. It is quite another to invest in that future, and that is exactly what we would like you to do, today.
It is of paramount concern that people at least know the facts about this syndrome. By educating those with Noonan Syndrome and their families in conjunction with their health-care professionals and teachers, we can provide the tools for those affected to become productive citizens within our community and throughout the world.
Thank you for visiting my fundraising page!
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support our fundraising efforts.
Our goal is to raise $10,000.00 in the next 2 months, this can be done. -- forward this to anyone who you think might want to donate too!
If - 1,000 people give $10.00 = $10,000 or
If - 500 people give $20.00 = $10,000 or
If - 200 people give $50.00 = $10,000
Thank you for your (tax deductible) contribution and commitment to a positive future for people affected by Noonan syndrome.
Wanda H. Robinson
President
The Noonan Syndrome Support Group, Inc.
http://www.noonansyndrome.org
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