Noonan Syndrome Support Group, Inc. Upperco, MD EIN: 52-2000922
Description: The Group is intended for people whose lives are touched by Noonan syndrome, to exchange experiences and hopes for people with Noonan Syndrome.
Mission: Members share...
Description: The Group is intended for people whose lives are touched by Noonan syndrome, to exchange experiences and hopes for people with Noonan Syndrome.
Mission: Members share experiences and exchange ideas on how to cope with Noonan syndrome. A Web site at http://www.noonansyndrome.org has a wealth of information. Also available to Internet users is an e-mail list service, offering educational and emotional support to new friends around the globe. Names of medical specialists who have worked with TNSSG in the past, is available upon request.Newsletter - The Noonan Connection is published on a quarterly basis Public Awareness - TNSSG helps fight misconceptions about Noonan syndrome and lets others know that help is available.
