Dedicated to making this the LAST generation with Huntington's disease!

The National Youth Alliance is for anyone age 9 through 29 who is living with Huntington's Disease in their lives. The support, love and encouragement that these young people share with each other is phenomenal and would melt anyone's heart! Every one of the NYA members is exuberant and totally dedicated to their mission!   

The majority of these young people are at-risk for Huntington's Disease. Many, who while struggling with their own risk for being positive, are making sacrifices every day. Some have given up their dreams for a college education or career to help at home while others may be fortunate to be able to pursue their dreams and are either full time students or working on their career.

About 20% of the members are young people who have tested positive with the Juvenile form of the disease. Some are pre-symptomatic while, in others, the ugly progression of the disease is clearly visible year after year.

The rest of the NYA members are those who have tested negative, are young caregivers, or have a family member or a friend with HD.

HDSA NYA Mission Statement

• To provide a support network for youth with Huntington's Disease in their lives.
• To bring attention and understanding of this disease from the community.
• To help in any way we can to become the first generation without HD.

Help us help each other, make a donation to

HDSA's National Youth Alliance today!