PLEASE HELP ME MEET MY GOAL.....I'M ALMOST THERE..
As you already know I have Fibromuscular dysplasia.(FMD) There is no known cause or cure for the disease and everyday more and more patients are being diagnosed with fmd. Three fmd clinics have opened in the last year and are seeing patients from all over the World. The thought is that fmd is not rare at all just under diagnosed and not looked for.
Our recent accomplishmenst.....
The Wall Street Journal did an article on fmd that made Page 1! "The Rare Disease That Isn't" . http://online.wsj.com/article/SB124605981966763611.html
Also, Mystery Diagnosis filmed a recreation of my story and it started airng in September.
The International Patient Registry has been active since January 2009 and this is costing more than $50,000 a year. PLEASE CONSIDER EVEN A SMALL DONATION- IT REALLY MAKES A DIFFERENCE. Thank you for your continued support! and please visit www.fmdsa.org for updates.
Warm regards,
Pam