Parent Project Muscular Dystrophy (PPMD) is a not-for-profit organization founded in 1994 by parents and grandparents of children diagnosed with Duchenne and Becker Muscular Dystrophy. PPMD’s mission is to improve the treatment, quality of life and long term outlook for all individuals affected by Duchenne muscular dystrophy through research, education, advocacy and compassion.

Duchenne muscular dystrophy (DMD) is the most common, lethal, genetic disorder of childhood. It affects approximately 1 in 3500 boys worldwide. DMD knows no boundaries and crosses into all cultures and races. DMD is a progressive muscle disorder for which there is currently no treatment or cure.

PPMD has made great strides in the DMD community by funding high impact research, fighting to create standards of care, and providing up to date information to families regarding DMD treatment and care.  It is the largest grassroots organization in the that is entirely focused on Duchenne muscular dystrophy and the well being of those affected by DMD.

The DMD community can expect PPMD to continue to help young men with DMD live long, independent lives into adulthood.  Along the way, we will continue to draw motivation, inspiration and determination from the incredible strength of those who Face It! Live It! and Change It! every day. 

Parent Project Muscular Dystrophy' strory will not end unitl we find better treatments. Even then, our story will continute unitl 100% of young men with DMD have access to what so many have believed in for so long:  a cure.

We hope you'll use your strength to help us contine to fight Duchenne muscular dystrophy.