On June 12th, we plan to hold a Fundraiser/Walk for the New England PWS Community. This walk is being sponsored by the New England Chapter.
The event will be held at Borderland State Park from 9:00AM-2:00PM. Following the walk there will be a Photo shoot as well as a get together to meet other PWS families and network. Please bring a brown bag lunch to enjoy in the park while meeting families.
Adress of the park:
259 Massapoag Avenue
North Easton, MA 02356
Please click on the "Get Started" link above and select the Second Annual PWSA New England Walkathon to sign up for the walk and receive donations. Any donation collected outside the Firstgiving website can be documented on the site and collected the day of the walk.
If you would like to donate to a friend's page search for your Friend to the right.
Prader-Willi syndrome is a complex non-hereditary birth defect resulting from an abnormality on the 15th chromosome. PWS typically causes low muscle tone, short stature if not treated with growth hormone, incomplete sexual development, and a chronic feeling of hunger that, coupled with a metabolism that utilizes drastically fewer calories than normal, can lead to excessive eating and life-threatening obesity, among many other medical and developmental issues. PWS is the most common known genetic cause of life-threatening obesity. Prader-Willi syndrome is a life-long condition and currently there is no cure.
*Prader-Willii Syndrome Association New England is a non-profit organization with a 501(c)(3) status as designated by the IRS and is dedicated to improving and enhancing the lives of everyone affected by Prader-Willi syndrome. This event will benefit both the PWSA New England and PWSA USA National organizations.
