What is Prader-Willi Syndrome?
PWS typically causes low muscle tone, short stature if not treated with growth hormone, incomplete sexual development, and a chronic feeling of hunger that, coupled with a metabolism that utilizes drastically fewer calories than normal, can lead to excessive eating and life-threatening obesity, among many other medical and developmental issues.
PWS is the most common known genetic cause of life-threatening obesity.
Prader-Willi syndrome is a life-long condition and currently there is no cure.
How Fundraisiers Support Our Mission:
- Parent Mentoring
- Research & Awareness
- Medical & Crisis Support
- Education and Public Policy Advocacy
Upcoming Events!
May 2- 4, 2013 - Casting for a Cause- Everglades National Park, FL
May 4, 2013 - Have A Heart For Arkansas- West Memphis, AR
May 4, 2013 - Ohio On The Move Walkin' With Wylee - Washington Court House, OH
May 10, 2013 - 2013 Prader-Willi Golf Scramble Minnesota- Stillwater, MN
May 11, 2013 - Prader-Willi Syndrome On The Move- Oconomowoc, WI
May 11, 2013 - Family Fun Day To Cure Prader-Willi syndrome- Palm Beach Gardens, FL
May 11, 2013 - I Heart Momma Trail Race- Proviso, IL
May 11, 2013 - On The Move- North Bend, OR
May 11, 2013 - Michigan Prader-Willi Awareness Walk- Jackson, MI
May 18, 2013 - Fitness Fun-Raiser - Utah Prader-Willi Syndrome Association- Lehi, UT
May 18, 2013 - Navigon Financial Group Presents... 5k/10k Walk Run- Cary, NC
May 18, 2013 - Prader-Willi Syndrome Association of Indiana On The Move- Indianapolis,IN
May 19, 2013 - On The Move Walk N Roll- Middleton, CT
June 1, 2013 - Hunter Len's 4th Annual Golf Classic- Lakesville, MA
*Prader-Willii Syndrome Association (USA) (PWSA (USA)) is a non-profit organization with a 501(c)(3) status as designated by the IRS and is dedicated to improving and enhancing the lives of everyone affected by Prader-Willi syndrome.
A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION FOR PRADER-WILLI SYNDROME (USA) MAY BE OBTAINED FROM THE FLORIDA DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE, WITHIN THE STATE OF FLORIDA, 1-800-435-7352. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE.
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Federal Employees Combined Federal Campaign Number is 10088
